yes. dx'ed with a 'paradoxical pubo-rectalis' quite unfortunate.

But, your doctor doesn't know the cause, right?

My G.I. Doc said mine is neurological.

Well, I had better try to get some sleep. We are leaving this afternoon, and I have to at least have my clothes, etc. ready.

Talk to you Thursday evening.


Chelle

I was struggling, suffering, took forever - once a week or so got a large constipated into rocks, hurtful poop out. Such an effort and fear of never completing task! Fiber, etc. never seem to help. A urologist told me some Miramax in my coffee every day. Increased some a little every day and found perfect dose. Too much I get squiggles and fudgies. Now 1-2 times a week a formed, but soft enough to easily some out nice size stool is formed and passed. I hate using a drug (Miralax) everyday but the benefits outweigh anything else. Ran it past my GCP and she's fine with it. I'm much happier now!

Hi, Kicker.

My problem is that the internal **** sphincter muscle does not send messages to my brain, so, the only way stool passes is when the bowel is too full, and the stool has to be firm enough to force the muscle to open, but, here's the major problem, it will only allow a small amount of stool to pass, and then it clamps tight again. I am unable to empty completely. Soft stool will not pass, at all, and I am miserable, as it makes the nerves in my spine hurt, all the more. My G.I. Doc and I have tried Miralax, etc. but it doesn't solve the issue with the sensory nerves in that muscle.

Hoping my new Spine Specialist will be able to give me some answers on Friday, or at the very least, refer me to someone who can help me.

I'm not Dx'd yet.

Thanks for replying. I really appreciate it.

Now, I have to get ready to go out of town for 3 days.

Chelle

I had the same problem in that I would go every if not every other day but it was cement hard chunks and they were painful and sometimes sharp to pass. my gut was sooooo slow! Ended up in the hosptial and dx with gastroparesis (frozen stomach) stuff just sits there, and even if/when it hits the intestine it eeks along at its own slow pace. Frequently the chamber would stay full for a day or more because I dont have the nerve signal that says to let it go.

I stared on a drug called Motillium that we had to order from outside of the USA. My GI was instrumental in helping me figure the whole thing out. My vagus and phrenic nerve have been affected by MS, and therefore stool sits for a loooong time in my intestine till something triggers the opening at the bottm to behave and the opening at the top to push to send more down.

I tried miralax and it worked great for a bit and then....fudgies! couldnt regulate it for my needs. Tried Reglan (which empties your tummy/intestine but it gave me twitches, tics and tremors. Those can turn permenant so I had to stop. Laxatives just made it soft, but not easier to give my brain the signal that it was time.

I had a complete work up by the GI team so they could figure out whch nerves were involved before I went on Motilium. it wont heal the nerves, but it will supply the same signal to the brain that its been missing. I take it 15 mins before each meal I eat and as it starts working, the stomach and intestines get the message that its time to work. I do not have diarrhea, or constipation anymore, just a normal routine most of the time.

Dejibo,

This is the most useful information I have received. I will talk with my G.I. Doc about the possibilty of ordering Motillium.

You've described my problem to a T!

Thank you so much.

Chelle

Hi, Dej.

You mentioned in your "Welcome" post that bowel problems were one of your 1st symtpoms of MS.

Did you have brain MRI's and MRI's of the spine to get your dx of MS?

Or, were you dx'd based on the bowel not functioning correctly?

I had brain & spine MRI's in '07, and only 1 tiny white dot on my brain, nothing on my spine.

Chelle