Well, I have a Neuro appointment this afternoon and my left leg is doing it's "thing" so hopefully I can demonstrate how gimpy my walk is. Usually my symptoms seem to magically disappear whenever I have a Neuro appt. but reappear once I get back home. Not Funny!!

My hips have been hurting and I know it's my gait that's causing it. I wonder if he will suggest PT? If I slow to a snails pace I can walk fairly normally but nobody walks that slow normally.

I've had the weirdest thing going on with my left leg, though. I'll be walking along...slowly....and it's like I lose the ability to move my leg when it's mid-air as I'm taking a step. Feels strange and when it happens I "stomp". My left foot doesn't land on the floor in a walking motion....my whole foot just lands flat on the floor. It won't do that again for a while but it always catches me off guard when it does. Sort of like my leg just freezes mid step. Is that as clear as mud? . I never know how to describe these things. It's barely noticeable unless you're looking specifically for it and only I can feel it.

Oh well, just something else that only us with MS can relate to!

Really hot!!!

MRI went well this morning (up at 6 am, hospital at 6:45 am, was in the tube at 7 am or a bit after).

30 minute exam... 20 min pre-contrast, then 10 min or so after the injection.

Do I ever dislike the 'cold' sensation that crawls through the arm/side of the body of the injection. Ick.

I did fall asleep in the tube during part 1... Glad they had 'wedged' my head in place for imaging, since I dozed off and caught myself snoring.

Here too!! We have heat warnings here today.

My appointment went well. No PT for me. He didn't spend much time with me today like he usually does. He's nice enough but his "bedside manner" leaves alot to be desired. Got my orders to come back in 6 months - or sooner if needed.

Oh, and the receptionist saved me a brownie from their catered luncheon they had today!

I'm bored today. The hug reared it's nasty squeeze last evening. I tried doing something more physical today, like straightening up the house after our weekend but the hug yelled and squeezed me even more. So today I am laying flat on my back or on my side and applying ice and playing on the computer. I hate days like that and get so bored. My mind is saying seize the day and my body is saying no way. My body won the battle.

Good things from today . . .I learned how to iChat this morning. DD19 is at her bf's parents house and needed something. Long story short, since her phone is not working right and she can only text, iChat was the easiest way I could read her the information she needed. It was pretty cool and i actually enjoyed it.

Maybe your primary doctor will order PT. Mine is always asking me if I would like to go for more PT. She tells me to just call if I want to go.

heat index this afternoon was 113! That's how I'm doing. I usually don't allow my DH to take a handicap place near to the building. I figure that should be saved for some one worse than I am but I do't mind him taking the first space today.

I don't know why but I am still getting little checks as refunds form Moms accounts and I finally got word form the VA that they are ready to take thier money back so I have to take a trip to the bank tomorrow. I thought the VA electronically removed the money. I will call the local VA first and also ask the bank. I'm not sending just any check off to the VA. I want Moms checking account closed. Or at least give it over to my brother who lives 4 hours away but is the executor.

HOT! didnt walk today. too hot. I have been experimenting with my diet. I read an article that If you hit a plateau and cant figure it out start dropping foods off the list. #1 to drop is oatmeal. Well, I eat oat meal EVERY morning! I dropped it and lost 2 pounds in two days! They were saying that sometimes your body gets so used to a food, and some oatmeals have sugars in them and that causes inflammation...(I admit I was using the prepackaged stuff) and to simply allow your body to wash off of it should allow it to rebalance. I normall had to work my bum off all week to loose 1.5 pounds, so how can just dropping oatmeal make me loose a pound in one day? I must research this.

mom got her goodbye quilt on monday. Refused to answer the door for UPS so they left it tucked in her door. As she left she kicked it into the bushes and it lay there till this morn. My sis went over to take her to an MD appointment and asked if she was crazy to leave it out there. She said "its from the liar! I dont want it, and...she gave it to my drug addicted sister! so...that was money well spent. according to my neice sis refused the package and left it on the couch unopened. Either way I was done with that package. With the latest drama I know I made the right choice. Dear God how did I end up with such a mom? Well, it is what it is.

Saw a new neuro yesterday. Cute lil thing. She said "its time for your MRI!" I said "um..no!" she said "whuh? " I said you can have ONE every 2 years! not every six months. She had to get the head guy in the room, and we settled on one per year. We went on about my decreasing vision, my hug sx, and my brain tumor and then they threw out the standard of care...I went on about intubations, gastroparesis, severe anxiety, ...so we all met in the middle. Half as many as I wanted, but half as often as they wanted too.

my son is surviving well after his car accident, but living with sticky head is getting to him. She is a money bully and keeps taking his paycheck. How can he save for a car if he has zero money? He has asked if he can come up here. I said "for retraining, yes! for hangout and sob stories, no!" so he has already called all of the phone #s I gave him. He has several interviews lined up. God save me. this is going to be hard.

Thats how I am doing.

I forgot to mention yesterday.....or maybe I meant to forget to mention it ........the nurse weighed me at my Neuro appt and I've gained 4 pounds! I know I sneak a treat every now and then but four whole pounds?! Oh well, guess I need to revise my eating habits a little.