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Old 07-10-2011, 12:45 PM #1
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Default MS-No Lesions?
Has anyone been diagnosed with MS based on symptoms, ogliconal bands, back pain, bowel problems, but no brain or spinal lesions?

Chelle
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Old 07-10-2011, 01:33 PM #2
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I was diagnosed mostly on symptoms. I did have a couple of lesions in my spine, but my doctor told me he would have diagnosed me with MS even without the MRI. He was just waiting for me to have another flare after the first one. (which my body conveniently came up with fairly quickly. 4 months after the first one. They just made me get an MRI to confirm stuff)
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Old 07-10-2011, 01:57 PM #3
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They didn't have MRIs in the old days, so yes I was DXed by symptoms, process of elimination and a myelogram/LP.
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Old 07-10-2011, 02:02 PM #4
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They didn't have MRIs in the old days, so yes I was DXed by symptoms, process of elimination and a myelogram/LP.
Thanks, Sally.

Neurosurgeon referred me to a different Neurologist that specializes in MS.

Praying I finally get a DX. Am getting to the point that I can no longer sit up or stand for very long.

Chelle
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Old 07-10-2011, 02:00 PM #5
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Originally Posted by Erin524 View Post
I was diagnosed mostly on symptoms. I did have a couple of lesions in my spine, but my doctor told me he would have diagnosed me with MS even without the MRI. He was just waiting for me to have another flare after the first one. (which my body conveniently came up with fairly quickly. 4 months after the first one. They just made me get an MRI to confirm stuff)
Thank you, Erin.

I am seeing a new Neurologist, and praying she believes in MS without visible lesions.

I have 2 ogliconal bands in my spinal fluid, and my former Neuro ruled out everything, and at first, said MS, then, decided he didn't want to "label" me with MS.

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Old 07-11-2011, 09:37 AM #6
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Default 1st dx from pharma rep
I have a friend who is a pharma rep who suggested MS when I complained of sx. Neuro did spinal tap & MRI before dx. I thought him being drup rep. that he was just pushing comp. line but I guess he did know what he was talking about.
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Old 07-11-2011, 10:15 AM #7
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I have a friend who is a pharma rep who suggested MS when I complained of sx. Neuro did spinal tap & MRI before dx. I thought him being drup rep. that he was just pushing comp. line but I guess he did know what he was talking about.
mochagirl13,

Did you have lesions in your brain and on your spine?

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Old 07-12-2011, 08:38 AM #8
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mochagirl13,

Did you have lesions in your brain and on your spine?

Chelle
I had them, but I can't remember how many. I had little ones that looked like pin holes. I only had them in my brain.
Last edited by mochagirl13; 07-12-2011 at 08:39 AM. Reason: added text
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Old 07-12-2011, 10:49 AM #9
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I had them, but I can't remember how many. I had little ones that looked like pin holes. I only had them in my brain.
In '07, when I had my brain MRI's, I only had 1 white spot, like a pin hole, but I know many people have been diagnosed without visible lesions, because not all lesions are visible on MRI's.

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Old 07-12-2011, 02:20 PM #10
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Originally Posted by Yorkieville View Post
In '07, when I had my brain MRI's, I only had 1 white spot, like a pin hole, but I know many people have been diagnosed without visible lesions, because not all lesions are visible on MRI's.

Chelle
Oh, you did have a spot. Well, maybe you do fit under the McDonald criteria. Has your new neuro seen the MRI you had done in '07?
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