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Old 08-09-2011, 09:53 AM #21
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Debbie D Debbie D is offline
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Debbie D Debbie D is offline
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Lady,
I'm on that new med. It has helped somewhat, but I notice myself getting angry-REALLY angry, more often lately. Due, in part to feeling powerless over situations in life, and voiceless also.
When I saw my pcp last time, she told me in no uncertain terms that if I didn't back off the situations with my ailing in laws, it "would take me down"...I have backed off, but I can't totally avoid the responsibilities I have with that. What makes me feel powerless is the fact that I felt they should be moved to assisted living, where they would have someone on call 24/7. My DH & his sis thought the place charged too much for what care is offered, and my MIL would be upset about the small amount of closet space.
So now I worry that if one goes into the hospital, the other will have to go into a nursing home, because they can't be alone. It is on my mind, and I'm angry that I didn't have a voice in this.
Added to this, the unpredictability of how my Sxs will affect my day weighs on me daily. I am so bad at prioritizing my energy output, that I often soy later in the day. I get overwhelmed and angry, and yes I do boo-hoo when I need the release. I never ask "why me?" none of us is immune to the slings and arrows of life. But I think the cognitive changes make it more challenging to deal with it all.
When I was in the ER last month, they gave me Atavan to calm down my breathing and heart rate...I felt so much calmer! But my docs won't prescribe any narcotics, afraid I'll become addicted. So I cope however I can...
Thanks to all fir the thoughts advice & support...
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Old 08-09-2011, 10:45 AM #22
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Debbie - You do have a lot going on. And, for some MSers, MS does alter our coping mechanisms. It is frustrating and upsetting and getting upset about it makes it worse. What is going on in your life right now is not something you can put on the back burner. It just isn't going to happen. I think most people in your situation would feel a lot of what you are feeling whether they have MS or not. Watching the people that we love decline so rapidly is not easy and emotionally can take it's toll.

I don't have much advice for you except try to connect with other caregivers (you are part of your in-laws caregiving team). They may have something at one of the assisted living facilities close by you. Talking with others in a similar situation may help you feel that you are by no means alone in what you are feeling and experiencing.

Also, try to find little things you enjoy doing that are stress free activities. For me, keeping my hands busy during stressful times is key. I do a lot of detailed artwork during that time. I write in my journal and that always helps. If you are able to concentrate enough to read a book, read. If you like doing needlework, go for it. (I used to do cross stitch years ago and found the same stress relief when doing it.) Listen to music. If you have an iPod or something like that, put all your favorite songs on there and listen to the ones that calm you and bring happy memories to your mind. It really does help.

Additionally, what I have found over the past few months that is helping me is magnesium. It's amazing how much better I feel when I take it regularly. My tremors have calmed down so much and even the muscle spasms/muscle fatigue. I am stronger since taking it regularly. Emotionally, I am less stressed and anxious (a bonus of taking magnesium). I use it transdermally but I also make sure I get plenty of it in my diet. MrsD has that fantastic thread about magnesium. It really does help.

Also, if you find that even with the meds you are getting angrier than before, ask you dr to switch you to something else. That med may not be the one for you. I had a reaction like that with Cymbalta. Three days on it and I started having aggressive thoughts. I stopped taking it and my PCP switched me to Paxil. Cymbalta was GREAT for nerve pain but was not the medicine for me emotionally. Paxil is great at keeping you calm but it was a little too calming for me and I eventually ended up with a flat affect. But, I would not hesitate to switch to Paxil during stressful times, even if it is only for a couple of weeks (which I did a couple of months ago and it was so helpful). For now, I am on Celexa which for the most part works well.

I will keep you in my prayers.
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