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08-02-2011, 03:10 PM
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Okay, I have been injecting betaseron since 2002. I never have to take a tylenol or anything and have never gotten the "flu" type feeling after taking a shot.
The other night after a shot I went to bed and woke at 4 a.m. with the chills, terrible headache, achey body and just felt terrible til mid morning.......then I was fine. Now I've experienced this a couple times before, but can't remember if it was after a shot or not. I haven't come down with anything like a cold or infection. My question: Anyone else experience this "flu" type feeling after a shot after being on it for a long time? Its was my understanding that these were early side effects of the drug.....I'm wondering if this is possibly what I experienced?
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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08-02-2011, 04:20 PM
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Elder
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viseeu just went thru the same thing. perhaps she will chime in.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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| "Thanks for this!" says: | SallyC (08-02-2011) |
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08-02-2011, 08:18 PM
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10 1/2 years on it... flu like symptoms occurred about 50% or the time--had them in the beginning and they never went away.
Vikki
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. . . first flare 7/22/2000
Dx 8/3/2000 RRMS-- no relapses since Betaseron 11/15/2000 Didn't miss a single injection the first 8 years. Now take about 6 shots off a year . Great minds discuss ideas, average minds discuss events, small minds discuss people. Hyman Rickover, "The World of the Uneducated", "The Saturday Evening Post", November 28, 1959 |
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| "Thanks for this!" says: | SallyC (08-02-2011) |
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08-03-2011, 07:53 AM
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Magnate
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Perhaps they started compounding the medication differently?
May want to ask the company of any changes in the medication. Wasn't it Copaxone a couple years back that went from a beat 'base' to corn 'base' formula, and thus several had unexpected reactions? If it's something you aren't used to experiencing, I'd ask your neuro, but also ask the drug company/pharmacy or your contact for the drug if anything's changed in how they're compounding it.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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| "Thanks for this!" says: | SallyC (08-03-2011) |
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08-05-2011, 02:52 PM
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Member
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Most likely it is just the variables of anything in our lives. Betaseron is not compounded, it is a Biologic so it is grown. Probably just one of those things, if it continues then talk to your Neuro.
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Bill SCUBA, the true meaning of Life San Francisco Maru 2009 USS Monitor 1996, 1997, 1999 Andrea Doria 1996, 1998 USS Wilkes Barre 1991 |
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flu like symptoms from the shots?
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