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Old 08-08-2011, 05:26 PM #1
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Default One of my 2 main pains caused by MS, Burning Mouth Syndrome.

A PDF which provides an excellent, thorough review of BMS (Burning Mouth Syndrome).

As this is one of my 2 main daily MS symptoms that doesn't go into remission (thus requires medication, other methods to ease pain) and I know others have reported also having BMS with Multiple Sclerosis, I hope this helps for those who have not found thorough information about a very difficult condition to diagnose and treat.

Hope this helps! Mine's eased by Clonazepam (which is on the list). Seems I'm type 1 according to article.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX

Last edited by dmplaura; 08-08-2011 at 05:27 PM. Reason: Edit: To view it you may need to reduce the % it's magnified to by default. 125% worked well for me.
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Old 08-09-2011, 07:47 PM #2
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thanks for this...I too suffer with BMS!
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Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
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Old 08-09-2011, 08:43 PM #3
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Quote:
Originally Posted by daisy.girl View Post
thanks for this...I too suffer with BMS!
I remember we'd talked about the pains before When did you recall yours beginning? Did you find a way that works for you to ease the discomfort?

Mine's been around since July 07 (if memory serves me correctly). Today was a more painful day than most. Think I'm working too much and need to slow down.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 08-09-2011, 09:04 PM #4
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I don't suffer from BMS but wanted to send you kids some hugs and well wishes..
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Old 08-09-2011, 09:54 PM #5
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I have had the burning mouth for about a year now. Can't imagine having it as long as you! Mine is not as bad in the mornings, but by the afternoon, it is killing me. Ice water feels wonderful, and if I miss a dose of my Neurontin....it gets worse!!
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Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
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Old 08-10-2011, 07:23 AM #6
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Quote:
Originally Posted by daisy.girl View Post
I have had the burning mouth for about a year now. Can't imagine having it as long as you! Mine is not as bad in the mornings, but by the afternoon, it is killing me. Ice water feels wonderful, and if I miss a dose of my Neurontin....it gets worse!!
I'm the same with Clonazepam.. I tried to cut back to .5mg daily (I'm at .75mg daily now) and the burning came back full force.

Yesterday the pain was through the roof, honestly. Think I 'overdid' it and caused a flare up.

I find that Stride peppermint gum (their b12+b6 gum as well, "Kinetic Mint") eases my BMS tremendously.

I tried to 'pin' the BMS on something for years that triggered it (medications, dental work, allergies, etc) and can't find ANY cause, save for what neuros have told me: Brain stem lesion. Seeing as how I suffer from Trigeminal Neuralgia as well, affecting the nerves into the head/face, it certainly makes sense that MS caused 'wiring' damage, thus the BMS.

I had my vitamin etc levels fully checked, checked for every A/I disease possible, various other blood work/investigation. All came out 'healthy', save for the MS.

Such a frustrating condition to 'guess' it's the MS.. but then again, doctors and neurologists play the 'guessing game' with the McDonald's criteria daily to diagnose MS. So much uncertainty with this disease.

Thank you Sally you're awesome!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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