I've been dealing with severely progressive symptoms of my disease for 11 years now and I have reached a point of chronic sleep deprivation and interruption. Chronic severe pain, spasms, and involuntary movements make me feel like I've been at the gym for 24/7.

At one point years back I tried that med that is suppose to address and relieve the severe fatigue and exhaustion. It started with an L I think. I had no impact. Even now I can drink two full pots of strong coffee with no positive impact.

Does anyone know of any type of energy Rx, drink, pill, powered mix, ANYTHING that might assist in this area? I am desperate and the situation is advancing in severity and each episode is lasting longer.

Thanks you for any assistance you can provide.

I'm so sorry Craig. I have taken Adderall, Provigil, and Amantidine without any sucess. That doesn't mean it won't work for you. Many people here have good luck with these drugs. I hope you find some relief soon.

The problem is I'm already taking, Hydrocodone 500mg, Tramadol, Tegratol, Clonazepam, and several other maintenance meds. I never sleep more than 2 to 3 hours at a time and grossly exhausted at the least little effort such as a doctors' appointment, trip to Walmart.

I too have had those Rx meds in the past. I now recognize the names, and they did nothing for me either. Thanks for responding and trying to help.

Hi Craig

I am so sorry that you are experiencing this. I have had severe sleep disturbance for months after brain aneurysm surgery, as well as MS fatigue, but nowhere near as bad as what you are describing.

I can't imagine how hard this is for you. It's no wonder sleep deprivation is used as a form of torture. It is so cruel.

Lyn

One of the ADHD Medications, Amphetamines, may work for you. Some are even Generic now, called Speed in the Day. For many even a low dose is great.

(((((Craig))))) Have ya tried LDN? If you are taking heavy duty opiod pain drugs, then it probably won't work, but it sure erased my chronic MS fatigue. Just a thought.

Have your doctors addressed your sleep deprivation? Is there ANYTHING they can do to help you get some quality sleep? This seems like the most important issue.

I'm probably stating the obvious but it seems like it would very, very hard to find a way to deal with the fatigue without finding a way to help your sleep problems.

Iron & Red Blood Count if low will do it to anyone. Anemic? You may know It's also a fact chips & fatty foods rob energy after you eat them.

Are you taking Requip or Mira....forgot the rest of the word...for Restless Leg?
How about cannabis to help you sleep? I try not to use it unless I really need it for painful spasms and the restless leg when the meds aren't working...it really tones down both. I make sure to do it later at night...the munchies are relentless!!

I too have apnea...98 episodes...the CPAP helps in that department, at least.

I wouldn't try Ambien for sleep if I were you...that stuff is dangerous...gave me the crazies with only one dose...how about Ativan?

I pray you get some relief, Craig...

I take Trazodone for sleep, it really does the trick and calms me down. It makes me move slower in the AM though but it's essential for me. I only take 25 mg which is a tiny dose and it works wonders. I sleep very soundly. It is old and cheap and safe and my neuro uses it regularly for MS patients.