advertisement
Reply
 
Thread Tools Display Modes
Old 08-14-2011, 07:40 PM #1
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default How many here on Gilenya?

I am just wondering how many people here are on gilenya?

Can you tell me any side effects that you have had?

I just started gilenya on Tuesday this week, and after 3 doses, I was having burning eyes, hip/leg pain, nausea, and this horrible feeling of shaking/tremors, like I was on speed.

My neuro told me not to take it Friday or Saturday and restart it on Sunday.

Well, I felt better on Friday and Saturday, and just took my dose 2 hours ago, and I again am having the leg pain, burning eyes, and nausea.

I want to give this long enough to work, but at the same time, I don't want to continue if I am having an allergic reaction....oh how to know with such a new med!!
__________________
__________________
Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction

Last edited by daisy.girl; 08-14-2011 at 08:03 PM.
daisy.girl is offline   Reply With QuoteReply With Quote

advertisement
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
any gilenya users laurasari Multiple Sclerosis 28 02-17-2015 11:29 PM
Gilenya -- fingolimod barb02 Multiple Sclerosis 60 07-25-2011 04:36 PM
Gilenya Study mochagirl13 Multiple Sclerosis 5 06-28-2011 04:32 PM
Gilenya price and thoughts D0ct0rT Multiple Sclerosis 9 05-11-2011 07:09 AM
anyone else frustrated with Gilenya support laurasari Multiple Sclerosis 0 03-17-2011 06:30 AM


All times are GMT -5. The time now is 06:46 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.