I'm so sorry that people are being so selfish and insensitive.
Personally, I don't answer the door when people show up unannounced and I let many calls go to voice mail depending on who it is and how I am feeling.
It sounds as though you have been very kind and generous with your time and effort.
Perhaps the next time you hear from one of these people you could beat them to the punch and ask them for something. For example, "I'm so glad you called! I really need a ride to Walgreens to pick up a prescription, my vision problems make it impossible for me to drive now." They might surprise you and help out, or at least realize just how bad you situation is.
I wish you the best, hang in there.

Hey Dej, have all the creepy, crawly, crumby, climate campers left yet??

Is there peace in the valley yet?

Thinking about you.

Aww, Sal! Thanks for asking about me.

I have been flaring, and blind and really feel quite poorly, and then someone thought it would be a great idea to give me a flu shot. The house keeper brought her snotty toddler with her, and the DH let her in with the kid, so...you know my flu shot and the kid's cold kicked in on the same day. I explained that NO NO NO kids! to both DH and the house keeper. Reschedule it, but dont bring the kid. you CANNOT do your job AND watch the child. So, I am wobbly, blind, nauseous, sniffly, feverish and struggling.

Cold air is finally here! the snow birds are packing up. It makes me soooo happy! I have handed out business cards up and down the street of a local woman who does errands, or will go check on your house, or shovel paths to oil spouts, or drop in and just check on your stuff. I made it clear that I am OFF the market this year! The few stragglers from the campground are starting to really bundle up in the morning. A few kids from the campground stole a car up the street, and joy rode it INTO a house!

My family has been extremely quiet. Explained to my niece and my DS that I am NOT going to get tangled with either of them. My phone is growing more quiet by the day. I dont answer any # that even comes close to my family. My son has done amazing! He got his RAM truck, and is working hard to keep moving forward. STicky Head appears to have left his heart, mind and soul. Took some patience, love and encouragement.

so, im down right now. im really struggling, but that is the nature of this disease. ((hugs)) thanks for asking, you cant believe how much that means to someone.

Awwww poopy Dej. I remember you making that clear to your housekeeper, about not bringing the sister or the kid. So sorry you are struggling right now.

Get plenty of rest and drink plenty of fluids (preferably Alchoholic)

Oh, yes, now I remember, "Couldn't We Just Kill em and Tell God They Died?" Sometimes people can be so incredibly difficult and insensitive. No way should your housekeeper have exposed you to the cold. I'm so sorry.

I am coming to a conclusion that it's really all about control. And self- sufficient cultures that offer pleasures to sooth our aches, instead of real inter-exchange/interdependency of human spirit. I cannot stop thinking about other less developed (those less financially based) countries and the hunger and recognition for interdependency! The awareness that it could be yOu next in line for being disabled is a reality and there will be the strong there to cover the weak.

Control if you have it, is essential in this self sufficient culture to survive on building your dreams. Any continual sacrifice out of it, leaves you further away from attaining it. I am just trying to reason why people just don't' get what the hell you are going though, nor do they want to FEEL the pull or discomfort of getting involved/the sacrifice can raise in higher levels should they get involved. and this is a WHole other thread isn't it?

In this culture, all loads can often be on each one of us solely weighing us down( even without any disability or suffering). But realize barely anyone I know coming form city life would know ( including myself) - HOw to 'cooperatively give and take' to cover the weak, ongoing, outside of our core family individual level of helpers.
Again, in my life, I was one of those people who thought loading up car of groceries for a person in need was good enough and then don't see them for few months. had no idea how insanely difficult things could get in the 'inner daily circle of needs'. control was my vehicle and it went fast! and cultural castle building principles' of slavery was my fuel.
hope this touches the soft yet integral places in someone's heart. hugs, Bon

Yeah, I'm starting to see how no one really cares. They ask how you are but that's just a way to make it seem like they care. If you try and say anything they seemed overwhelmed and don't really care to listen.

I end up with the same issues...hubby's feet hurt, yes he worked hard today..but he doesn't know or care to know that it took every fiber of my aching body to pick up the house, go to the store (only to forget the one thing he wanted..and has to have) and carried groceries slowly up the steps, then drug my slow painful self infront of the stove to cook his dinner, clean up his dishes, and then hear his feet hurts and then rub them for him.

My favorite question is "what hurts?"....EVERY DAMN THING...don't ask me again!...this is my mother's favorite, god bless her, but when I say I hurt...just say I'm sorry..or I hear ya, hope you feel better tomarrow..cause the moment you start the list...you see the eyes glaze over..

I think everyone should be able to spend a week in one of our bodies....then see what they have to say. Would be an eye opening expierence. No pun intended...I'm an Optician that can't adjust glasses anymore because of weak/painful hands and feet that won't carry me back and forth all day anymore.

Thanks for helping me vent too...

Great post, PM, thanks..