NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Wish I knew what to do (https://www.neurotalk.org/multiple-sclerosis/156779-wish.html)

SallyC 09-08-2011 01:47 PM

HaHaHa!!! Catch-22...good one Craig..:D

NurseNancy 09-11-2011 12:07 PM

i wonder if your neuro could refer you for some cognitive therapy of some sort.
i'm thinking of something to teach you how to deal with your forgetfullness in such a way that you'd make less mistakes.

i've read about it before. i don't know if it's occupational tx or not. darn, i can't remember.

Catch 09-15-2011 10:32 AM

Quote:

Originally Posted by NurseNancy (Post 804432)
i wonder if your neuro could refer you for some cognitive therapy of some sort.
i'm thinking of something to teach you how to deal with your forgetfullness in such a way that you'd make less mistakes.

i've read about it before. i don't know if it's occupational tx or not. darn, i can't remember.

I actually went through cognitive training over a year ago. It helped some, taught me some tricks, but nothing earthshatteringly new. I also did some additional online memory training for about 6 months. I've done everything I can think of, like I said, I now record my bosses dictation to me. I do the task according to my notes, then listen to the tape and make sure I go it all. Now I work even more slowly. I have not found a way to compensate for complete blanks in my memory. I'm having more difficulty focusing on conversations, I forget the subject during the discussion. With co-workers and friends, its not so bad, I just bow out gracefully and silently, but when I blank on my boss it is serious problem.

My neuro said there is full disability and partial. If I got a partial disability, meaning I can't do this job, but I can take a low level job at lower rate of pay and the DI will help me cover expenses? But I don't imagine it works like that. I've been on the SSDI site and it doesn't discuss full and partial DI (at least not that I've found.) Can I get a medium level part time job? The site says you can work while on DI, some sort of Work Incentive program, but I'm not clear on what that is.

NurseNancy 09-15-2011 03:22 PM

there should be a local soc sec office in your area. you could call them to get an answer to your Q.

the thing with ssdi is that it takes so darn long to get it.
i waited about 18 mos by the time it was all said and done.

doydie 09-15-2011 11:15 PM

I know the ADA laws are very specific on what they can do to help some one maintain their job. I don't know who to contact though except and ADA lawyer.

Catch 09-16-2011 10:16 AM

As for the ADA regs, I have been dealing with JAN, the Job Accommodation Network. They gave me some information that was very helpful, for a time.

My firm has done a pretty good job making accommodations for me, but unless my job description is completely revised, I really cannot adequately do my job any more. Calendaring is one of the worst issues I have. I just don't put stuff on the calendar! And I have a series of checks, obviously my double checking is no longer sufficient. Unless I come up with something new if my system is no longer working, it means I can't either:(

Needless to say, I'm bummed. I feel I let my family down. Even if I can keep working somewhere else, the pay decrease is going to be huge. I'm going to talk to our credit union about consolidating some credit cards and maybe get lower payments. I want to do all I can to ensure we don't lose the house.:eek:


All times are GMT -5. The time now is 12:43 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.