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-   -   Another limboland kid (sorry...long) (https://www.neurotalk.org/multiple-sclerosis/157458-limboland-kid-sorry.html)

Debbie D 09-19-2011 02:18 PM

I got a fibro diagnosis when I was 30...and had it for several years before that. Many of your sxs seem to be associated with fibro.
Keep a symptom journal with dates of onset & dissipation. Also keep a list of questions for your docs.
Make sure you are drinking enough water-muscle problems can be caused by dehydration.
Make sure you also get enough potassium daily.
Try to exercise, even if it's just a small walk, every day. With fibro and MS exercise is important.

It took me a few years to finally get an MS dx...I was told it was migraines (didn't have headaches), small fiber neuropathy, and other things.

Monkey 09-19-2011 02:49 PM

*edit*
Yeah...fibro has been mentioned to me too...and the possibility of both fibro and ms
I need to get my journal going again. I just hate writing in it.
I'm trying to drink enough water..it's not easy some days though :(
I'll work on the potassium...and trying to excersize more. I was told stretching only.

Thank you :)

goldie 09-24-2011 02:11 AM

definitely see a neuro soon - hopefully a good one - maybe one associated with Emory if you can.

MS, MG, something else, I have no idea, you'll have to have more tests unfortunately. Make sure they check B-12 too.

The awful heat wave this summer could have made things worse, so you might feel a bit better soon now that it's cooling off some.

Not knowing what's wrong is so hard, I've been there.

Hang in there - best of luck. :grouphug:


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