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Old 09-29-2011, 11:20 PM #21
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How about tying their feet together loosely with a figure eight of rope then have the try and walk with their feet heal to toe fashion to simulate the clumsy cordination issues?

Have them wear two turtle necks (one over the other) in the summer heat to simulate the messed up body temputure that is sometimes caused by ms?

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Old 09-29-2011, 11:42 PM #22
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Here is a picture of Elissa and me after she gave me a floor massage. Whose smile is bigger? Mine!
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Old 09-30-2011, 04:51 AM #23
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Oh my goodness - what a pretty girl, you must be so proud of her, and what she is doing to bring awareness to people.

Lyn
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Old 09-30-2011, 11:27 AM #24
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Quote:
Originally Posted by Aarcyn View Post
Here is a picture of Elissa and me after she gave me a floor massage. Whose smile is bigger? Mine!
What a great picture of you two!!! Such beautiful women you both are!

Massages make such a big difference don't they. I am glad it helped you too and it will be so great to have a massage therapist in the family. You will find that you need less medication after the massages - or at least I do.

Anyhow, let us know how her project goes and what she does.
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Old 09-30-2011, 05:35 PM #25
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May not be the best idea ever, but there are lots of patient experience videos on youtube and those are always interesting and creative. Check them out, too. Take care, Heather
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Old 09-30-2011, 07:50 PM #26
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May not be the best idea ever, but there are lots of patient experience videos on youtube and those are always interesting and creative. Check them out, too. Take care, Heather
Indeed, I remember watching Lauren's video in a relapse right after I got my own diagnosis. I cried right along with her. It really helped things make a lot more 'sense' at the time for me being newly diagnosed.
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Old 09-30-2011, 09:40 PM #27
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Love your picture, Cyn. Thanks so much for sharing.. You are such a pixie, love your hair..
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Old 10-16-2011, 11:32 PM #28
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DD's presentation at her massage therapy final was a huge success. She sent me pictures to post but I am having problems figuring out how to attach them. It is on my things to do list but I wanted to post to let you know what she did and how it was received.

At her table, she had reading glasses with a lens smeared with vaseline; DH's shirt and a pair of dish gloves; writing paper/pen and she was ready to jiggle the table.

On a large poster board, she drew the NMSS logo and took various suggestions from you and printed them, backing the various entries with colored paper.

Most of the people did not want to try the interactive examples of what it felt like to have MS. That was a surprise to her and to me.

However, EVERYONE read the various entries you had posted. People took a lot of time to read and the main reaction was feeling an insight because you all are real people with a real problem.

You all made Multiple Sclerosis a personal experience by replying to her request.

Funny how I thought everyone would love to "do" things but one never knows what to expect.

Thanks.
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Old 10-16-2011, 11:43 PM #29
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haha. She had sent me this thank you but I only got the pictures. I jumped the gun to say what she had said to me and next thing I knew, she had written a post for all of you!

So it may sound like a repeat but in her words...

To all who responded:

Thank you so much for all of your input for my Pathology project. It went great! I made a poster where I put up all of your posts and I had two simulation games. When people came over to my booth, I had them try on glasses with vaslin on them and have them put on dish washing gloves and button a shirt. All of them could do it but what I pointed out to them is how much concentration and time it takes with the gloves on to button the shirt. But overall I must say that what all of you wrote was everyone's favorite part! Everyone that came up to my booth sat there and read each entry and where amazed at what was written. I got a lot of people that turned to me and said "I kinda knew what MS was but I didn't realise...." They all loved that time was taken to respond to my post and that REAL people were giving information instead of the normal, read off a paper from the internet. I appreciate all ideas and having you share a part of your life with me. Thank you so much!

-Elissa Berg
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Old 10-17-2011, 10:10 AM #30
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Aw, Cyn! That is great! I am so glad things worked out well for her and that others learned from what we posted. Thank you for sharing her note.
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