NeuroTalk Support Groups - A question about O.N. (Optic Neuritis)

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So sorry you have to go through this, Laura. Big hugs and prayers are with you :hug:

Thank you! :) I'm on the new prednisone taper prescription now. 4 today, 4 tomorrow. My sense of smell is coming back :o !.... I forgot what smells I was missing! I normally have very altered taste/smell.

Eye's a lot better now... still wearing shades and keeping eyes off digital, but I'm slowing incorporating some back in. Was able to watch some football today. :)

Woohoo, Laura, nice to hear..:)

Quote:

Originally Posted by dmplaura (Post 810960)

I mainly hear from folks who had O.N. pre-diagnosis or at diagnosis... what I'm curious about is how common is it for O.N. to develop later on with MS?

Have any of you been diagnosed with O.N. well into the disease course?

I'd be interested to hear your stories.

I have O.N., sometimes it feels like and ice pick stabbing me in my eye. There have been a couple of times that I have woke up and I saw only grey with a few blacker visions were the door was, it was very scarey. Mine hasn't gone away, it just flares up from time to time by being overworked, fatigue, heat and whatever else triggers all this MS stuff.

Quote:

Originally Posted by dmplaura (Post 811163)

I've heard O.N. is painful - is this always the case?

I got curious about O.N. because the last 2 days, I've had a spot in my left field of vision that's 'gray' or blurry. When I try to look with that left eye only, I see things very dulled/gray (like black text on white looks gray and almost like pencil that someone's erased parts of).

I was told my optic nerves looked to be in great shape, so now I'm concerned that perhaps I've since developed (or started to develop) O.N. This isn't painful, and not completely encompassing the entire eye.

(just noted - when I look at a white wall, the spot looks more like what you'd see if you were to stare at a bright light too long.. only it doesn't disappear).

Luckily I'm already lined up this month to see my GP... and review my last MRI scans, or discuss my next neuro appointment to do so. I'll have to bring this to her attention if it doesn't subside. I guess it's off to the ER if it doesn't improve. Sigh.... :rolleyes:

Stinking MS!

.... granted this may not be MS alone. I had a wicked vicious headache yesterday (probably more in line with migraine) so I'm wondering if the eye issue may be more migraine related. The headache was across the forehead, but more pronounced on the left (as is my neuralgia in general).

I agree with Blessings. Ask if you can get an appt with a Neuro -Opthamologist. I have one and he is well versed in MS also. Mine works well with my regular Neurologist. Prayers for you!