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-   -   After umpteen years I finally have a diagnosis! (https://www.neurotalk.org/multiple-sclerosis/158552-umpteen-finally-diagnosis.html)

SallyC 10-05-2011 12:39 PM

Yeah, but my Correlle still has to be washed..:eek: :D

tkrik 10-05-2011 01:23 PM

Congratulations on finally making it out of Limboland. I'm sorry you landed on the uncharted territory of "your" MSville. :D But, at least you now know what it is that you are dealing with. I hope it continues to be be mild for you.:hug:

dmplaura 10-05-2011 05:44 PM

Quote:

Originally Posted by Erin524 (Post 812215)
I use Correlle plates now. They're lighter, they dont break easily if you drop them, and spaghetti doesnt leak thru them like paper plates. And, you can put them in the microwave.

The good china is too heavy to carry once you put food on the plates.

I've had my Corelle plates ALL through University (1996-2001) and still to this day have them. The only piece that shattered (literally a million pieces) was 1 bowl of 8, and I found a replacement in a thrift store. :D

Love love love Corelle!!!

Sorry to thread-jack you doydie. Back to you <3 :)

NurseNancy 10-05-2011 06:03 PM

now that is not a good example to set for others, taking so long to be dx'd.

Blessings2You 10-05-2011 06:09 PM

I "only" had about a year and a half of limbo, and when I got my diagnosis I wept with mixed emotions, one of which was relief. Sure was hard to explain.

dmplaura 10-05-2011 10:47 PM

Quote:

Originally Posted by Blessings2You (Post 812315)
I "only" had about a year and a half of limbo, and when I got my diagnosis I wept with mixed emotions, one of which was relief. Sure was hard to explain.

That's just it. Those of us who have heard the words from the horse's mouth (so to speak) know exactly the mix of emotions involved. It is very hard to describe to someone who's never been through such a life-changing diagnosis.

doydie 10-05-2011 11:40 PM

Funny thing is I never really thought of myself being in limboland. And if having an excacerbation brought me one step closer I never wanted to have one. I was very comfortable being labled as clinically probable for the rest of my life. My husband was always sceptable, he wanted them to find a stroke. And my neuro was begining to wonder since I have been so stable all these years and the MRI the same. So for them I am glad it is finally settled. But I was fine with it last 1997. My neuro has always treated my 'condition' with the utmost respect. Routine MRIs, Avonex, yearly exams, everything she would have done with any other MS patient. So I was satisfied and really had no interest in being anything else if it came with another positive test or symptoms.

marion06095 10-07-2011 09:04 AM

You are the conquering hero!

When I was finally diagnosed after decades and decades of being told it was all in my head, I considered it a triumph of my will over all those medical “professionals” who were so quick to dismiss me. I seriously considered putting together a letter of some sort to send to some of my past doctors pointing out how obvious my symptoms were, and how dumb they were for missing the diagnosis. I didn’t, of course. I have more productive things on which to spend my time.

Knowledge is power. Spread this power lavishly in all the corners of your life.

karilann 10-08-2011 09:29 AM

It definately feels better to know the truth........:hug:

sabimax 10-08-2011 08:01 PM

so girl, you were on Avonex with out the DX?? I just wonder as I am that limbo lander since first numb/tingling stuff in face in hmmmm started after having Jasmine so she just turned 12.... so LONG time....

I pass MRI exams, pass other tests, but then getting worse year to year.. with the MS like sxs....

The side doctors, like my latest ER visit dr, and neuro pysch that did my memory testing in 2006 and others all will be like hey have you been tested for MS..?? hehe.. but neuros I have met are like nope not MS your MRI is normal.... although latest Neuro is good to at least know it is elephant in room... but not into giving meds without DX....

anyhow... sorry babbling... had another MRI of brain and neck the other night, this coming week should hear from Neuro if anything shows up... but I am so ready to have a name for all my crap... if I am having the sxs why would giving it a name be any worse... might throw a party if told MS finally someday.... bittersweet stuff...

hugsssssssss


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