Home Menu

Site Navigation




advertisement
NeuroTalk Support Groups > > >

After umpteen years I finally have a diagnosis!

Reply
Page 1 of 3 1 23
 
Thread Tools Display Modes
Old 10-04-2011, 11:22 PM #1
doydie's Avatar
doydie doydie is offline
Elder
  
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
doydie doydie is offline
Elder
doydie's Avatar
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
Default After umpteen years I finally have a diagnosis!
My recent episode of ON and positive Evoked response test finally gave me a diagnosis. I have gone form clinically probable To RRMS! My MRI has looked the same from 2/97 to 4/11. I have had an excacerbation in '99 and then this ON.
__________________

.
doydie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Blessings2You (10-05-2011), Dejibo (10-05-2011), dmplaura (10-05-2011), hollym (10-08-2011), Jappy (10-05-2011), Jodylee (10-06-2011), jprinz99 (10-15-2011), karousel (10-05-2011), Lady (10-05-2011), nemsmom (10-05-2011), NeuroNixed Craig (10-09-2011), NurseNancy (10-05-2011), SallyC (10-05-2011), Twinkletoes (10-09-2011)

advertisement
Old 10-04-2011, 11:57 PM #2
Lady's Avatar
Lady Lady is offline
Senior Member
  
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default
I hate to congratulate you for having MS, but you have had patience. I hope it stays very mild for you always.

We all need to know what is wrong with us when we don't feel well or know something is so wrong with our bodies. I'm glad you finally have a label for yours now.
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Jappy (10-05-2011), nemsmom (10-05-2011), NeuroNixed Craig (10-09-2011), SallyC (10-05-2011)
Old 10-05-2011, 01:14 AM #3
Erin524's Avatar
Erin524 Erin524 is offline
Elder
  
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default
ummmm....yay?

Sorry you got your official "MS Club" card. The club members are all pretty cool, but the club "dues" (aka "symptoms") really really really suck.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Lady (10-05-2011), nemsmom (10-05-2011), NeuroNixed Craig (10-09-2011), SallyC (10-05-2011)
Old 10-05-2011, 01:45 AM #4
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
  
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default
I can't say congratulations either but I'm pleased that you no longer have to go through years of tests and years of wondering. If anything good can come out of this diagnosis, then I guess that's it.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.
Koala77 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Jappy (10-05-2011), Lady (10-05-2011), nemsmom (10-05-2011), NeuroNixed Craig (10-09-2011), SallyC (10-05-2011)
Old 10-05-2011, 06:14 AM #5
Lynn's Avatar
Lynn Lynn is offline
Member
  
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default
I echo the sentiments of the others - I just think the monster you know isn't as scary as the one your mind can conjure up.

I hope that this MonSter isn't too hard on you, but at least you have some validation in your own heart now (and for those around you). I am sure that you have known this for a long time, but a definite Dx is reassuring and kinda empowering.

Guessing you don't know how the hell to feel now, is it a bit anticlimactic???

Regards

Lyn
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Jappy (10-05-2011), Lady (10-05-2011), nemsmom (10-05-2011), NeuroNixed Craig (10-09-2011), SallyC (10-05-2011)
Old 10-05-2011, 07:45 AM #6
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
  
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default
welcome to the club house. Let Sally show you where we keep the good china. Im sorry, but glad at the same time. its horrible to be on limbo isle, and wonderful to have a dx, but im sorry it has to be this one.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Jappy (10-05-2011), Lady (10-05-2011), nemsmom (10-05-2011), SallyC (10-05-2011)
Old 10-05-2011, 10:35 AM #7
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
  
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default
Glad you're off Limbo Island as well...at least now you know the enemy, and so do your docs...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Jappy (10-05-2011), Lady (10-05-2011)
Old 10-05-2011, 11:14 AM #8
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
  
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default
Welcome to the club O.N. will seal the deal, that's for sure.

(nice to hear of another who had O.N. show up after 'vague' symptoms of MS... which is pretty much my case as well, though I had met the McDonald's criteria for the diagnosis originally, prior to my O.N. showing up just this last week).

As others have said, sucks to 'welcome' or congratulate in any way the diagnosis... but when one's waited so, so very long for a 'name' and closure, it is something to be congratulated if you ask me. At least in my experience, it was a HUGE relief.

Here's to healing and you know you have us and I hope too a great immediate support group or network.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (10-08-2011), Jappy (10-05-2011), Lady (10-05-2011)
Old 10-05-2011, 12:22 PM #9
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
Quote:
Originally Posted by Dejibo View Post
welcome to the club house. Let Sally show you where we keep the good china. Im sorry, but glad at the same time. its horrible to be on limbo isle, and wonderful to have a dx, but im sorry it has to be this one.
Ditto , but I only use paper plates, now. The good china will be donated to the museum..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Jappy (10-05-2011), Lady (10-05-2011)
Old 10-05-2011, 12:36 PM #10
Erin524's Avatar
Erin524 Erin524 is offline
Elder
  
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default
I use Correlle plates now. They're lighter, they dont break easily if you drop them, and spaghetti doesnt leak thru them like paper plates. And, you can put them in the microwave.

The good china is too heavy to carry once you put food on the plates.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (10-05-2011), Lady (10-05-2011)
Reply
Page 1 of 3 1 23

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
14 years of constant pain and i finally got a tos diagnosis!!!!! VodKanockers Thoracic Outlet Syndrome 4 03-15-2011 11:55 PM
Finally, a diagnosis Gyrene Peripheral Neuropathy 11 07-31-2009 06:14 PM
I Finally Got My Diagnosis Dena Thoracic Outlet Syndrome 12 12-30-2007 10:50 PM
A Diagnosis, Finally! Ellie Women's Health 5 07-30-2007 04:10 PM
20 years and finally maybe a diagnosis wildewolfe Trigeminal Neuralgia 2 01-09-2007 12:25 AM


All times are GMT -5. The time now is 02:47 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home