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Old 10-23-2011, 11:12 AM #1
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Default Open Your Medicine Cabinet - Let's Talk Meds.

I know different meds have been brought up in various threads but I thought it would be good to just do a general thread as opposed to specific medications.

So, other than the DMDs, what meds do you take to help with your MS symptoms?

For me, I don't do well with lots of medicines and only take a few - actually 2. I take Celexa and Neurontin. Originally, Celexa was to help keep me calm with the pain. But since depression/anxiety are common in MSers, I'm sure it helps with that. I take Neurontin for nerve pain. For me, it has done wonders and I only get breakthrough pain every so often. I'm on a low dose and have been for years.

I have Ativan for when the spasms get bad but I fight taking it and try to work through the spasticity without it. I know, bad girl. However, the pain from the hug and spasticity in my legs is increasing so I think it's time I reconsider this and will be working with my neuro at my Nov. visit. Since I am an extreme light weight, Ativan usually does the job. It's a benzo, just as Valium, Xanax, Klonopin, etc., but it doesn't knock me out like others do.

What do you take for pain, spasticity, etc.?
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Old 10-23-2011, 12:28 PM #2
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Hi ya Trish. Right now I just take LDN, Prozac and Aleve or Bayer Asprin for pain.
I also take a one a day, Tums(calcium) and D3.

However, I have tried a bunch of other Meds, over the past MS years...Avonex and Copaxone, Baclophen and Neurontin & Valium and Kobaxin... And several miscellanious herbs, vitamins, minerals and vita drinks..all flushed down the toilet.
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Old 10-23-2011, 12:51 PM #3
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Amantadine 2x a day, Vesicare 2 x a dayand Vicotin as needed (maybe 1-2 a week.)
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Old 10-23-2011, 01:44 PM #4
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I take baclofen for spasms and I am trying MMJ for pain.
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Old 10-23-2011, 02:28 PM #5
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baclofen, celexa, ativan, betaserson, requip.

I have other meds that I take once in a while. I have Klonopin for nerve pain but it knocks me out. I keep it on hand just in case. I used to take Provigil daily when I was working, but not any more.
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Old 10-23-2011, 05:31 PM #6
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Klonopin - one at bedtime (.5 mg). I was just taking 1/2 (.25) as needed at bedtime and I was only prescribed 10 pills at a time. I was taking it almost every night. But my doctor increased it to a whole pill at bedtime the last time I saw her -- about a week ago. I told her I needed a refill and she changed the prescription. It is kind of weird because she did not even discuss it with me. I am not sure if she made a mistake or not. but I decided not to question it. I have noticed that the hug does not seem quite as bad. Nothing seems to knock me out. I take it plus ambien CR and still cannot sleep some nights.

Baclofen never helped me. Zanaflex made me sick. Neurontin seemed to help at first, but I stopped taking it when I reached 3600 mg a day and it still was not helping. Tapering off of neurontin was hard!!!!!!!
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Old 10-25-2011, 06:49 AM #7
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The only prescription medication I have is Klonopin. It's multi-pourpose, I use it for anxiety/panic attacks and sometimes for pain/spasticity. For the most part I use it only as needed.

I take quite a few vitamins/supplements.
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Old 10-25-2011, 08:25 PM #8
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Clonazepam for tremors, Synthroid for low Thyroid, HRT, and LDN for a great mood and less pain from the MS hug and burning feet.

Plus about two handfuls of vitamins/minerals- all individual ones so I can take my correct dosage. I weaned off everything else years ago.
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Old 10-26-2011, 10:13 AM #9
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I get so sick of medications....everytime I go to the neuro, they want to add a new med or increase the dosage. I feel if I refuse, I am being non compliant.

How much medication can one body take??

I forgot to mention that I take (live on) Imitrex for my migraines. Along with all of these;

Copaxone
Neurontin
Klonopin
Zanaflex
Elavil
Lortab
Vit D
Magnesium
Vit B12
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Old 10-27-2011, 04:02 PM #10
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Quote:
Originally Posted by daisy.girl View Post
I get so sick of medications....everytime I go to the neuro, they want to add a new med or increase the dosage. I feel if I refuse, I am being non compliant.

How much medication can one body take??

I forgot to mention that I take (live on) Imitrex for my migraines. Along with all of these;

Copaxone
Neurontin
Klonopin
Zanaflex
Elavil
Lortab
Vit D
Magnesium
Vit B12
Wowsers... that's quite a list of medications, and I can understand your concerns about 'how much can one take?'. That does seem like an awful lot of medication. Why can't there be 1 pill to handle everything from the Neurontin to the Lortab (those 5 in order of appearance)? Egads.

Do you feel that any or all of the above help? Were you prescribed through your GP, neurologist, pain specialist, etc?

Everyone's different, so there could be very valid reasons in your case to be on that much medication, or why your doctor(s) believe these to be helpful/necessary... I'm not a fan of medications, but I'm less a fan of pain, spasticity, depression, anxiety etc etc.
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