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Hi MrsWufie. Are you getting treated for any of your symptoms even w/o a dx? I got my dx 4 months after my first onset of paralysis. They pretty much knew but had to wait until another episode. I think having a DX definately validates everything you are going through. Without one, I think you will always have that doubt in the back of your mind. You also can't get on a CRAB if you want to. But some can get treated for their symptoms, and I hope that is the case for most of you... |
Jena,
The only medication I'm on is neurotin to help slow down my nerves. So far, I can tell no change (other than controling the trigiminal neuralgia pain I was having). My neuro doesn't want to do anything at the moment -- and it's driving me crazy! She doesn't want me keeping a health diary or anything --which I think is odd since I'm having episodes of incontinence. And, I'm currently undergoing physical therapy. My feelings are if they can't find something, I'm going to do all that I can do on my end to try to make myself stronger. The one thing I've learned is that the medical system moves slower than molasses! |
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