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Old 05-09-2007, 07:51 AM #21
jena1225 jena1225 is offline
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jena1225 jena1225 is offline
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Quote:
Originally Posted by MrsWufie View Post
I'd just like to add that there are some out there who just want an answer.

For two months now (and from reading, I know some have been waiting longer for a dx), I've been having neurological problems. I think I have some things that go back further than that (ie - numbness & tingling on my right side). Every test I've had has came back within normal ranges -- and I've had MRIs, spinal tap, and EEG.

My life has came to a much different place and that's been the hard part. Because of my tremors, fatigue, and balance problems, I'm unable to work at the moment.

I don't wish MS on anyone -- but according to a specialist at Duke I saw, my symptoms are most closely inline with that prognosis. I don't care what it is, I just want to know what it is so I can know how to live my life...

thanks for letting me vent and add my two cents...

Hi MrsWufie. Are you getting treated for any of your symptoms even w/o a dx?

I got my dx 4 months after my first onset of paralysis. They pretty much knew but had to wait until another episode.

I think having a DX definately validates everything you are going through. Without one, I think you will always have that doubt in the back of your mind. You also can't get on a CRAB if you want to. But some can get treated for their symptoms, and I hope that is the case for most of you...
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Old 05-16-2007, 05:53 PM #22
MrsWufie MrsWufie is offline
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Jena,
The only medication I'm on is neurotin to help slow down my nerves. So far, I can tell no change (other than controling the trigiminal neuralgia pain I was having). My neuro doesn't want to do anything at the moment -- and it's driving me crazy! She doesn't want me keeping a health diary or anything --which I think is odd since I'm having episodes of incontinence. And, I'm currently undergoing physical therapy. My feelings are if they can't find something, I'm going to do all that I can do on my end to try to make myself stronger.

The one thing I've learned is that the medical system moves slower than molasses!
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