NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - MS (https://www.neurotalk.org/multiple-sclerosis/161236-ms.html)

Hello Kadi,

Welcome. I'm still looking for the best med for me. I hope your aggressive treatment help keep exacerbations away for a LONG time! This is a good site with caring people :)

Quote:

Originally Posted by SallyC (Post 830581)

Hi Kadi. Welcome to the club nobody wants to join..:D I am a spry 72 yr old chick, who has had the signs of MS since 24, DX at 36, Long remission and DX again at 53..:eek:

Age is relative. If you are still RRMS, then I would suggest getting tested for the JCVirus, to see if you qualify and it's safer? for you to Try Tisabri. That would be pretty aggresive treatment.:eek:

If you are SPMS OR PPMS, forget the DMDs, as they are useless and just have your Doc/Neuro treat your symptoms.....and maybe take LDN(low dose naltrexone) for symptom management and, I believe, slow the progression of your MS.

That's all I take now, LDN and Prozac, to scare the doom and gloom away.:D

Good wishes for you in whatever treatment YOU choose or not choose. Do your internet homework and ask us here...we support you and your choice.

PS...Do not have the LP, unless the Doc suspects something other than MS. Just not necessary and invasive.

:hug::hug:

Hi I picked up my test results today, I guess the doctor will talk to me soon.. Protein level is high so I guess I wait.

Quote:

Originally Posted by kadi1805 (Post 832418)

hi i picked up my test results today, i guess the doctor will talk to me soon.. Protein level is high so i guess i wait.

he says i have ms and i see him tomorrow, tues, 20th to talk about treatment, he is looking at tysiebri i might have spelled that wrong, and he said come in and ask all the questions i need answered. Kathy

Kathy - Sorry to hear about your official diagnosis. :hug::hug: There is a thread on here for Tysbari. You can find information on there and it may help with questions to ask your dr. tomorrow.

http://neurotalk.psychcentral.com/thread142931.html

Also, make a list of questions you want to ask. It makes it much easier on both you and the dr.

Let us know how your visit goes.:hug:

:circlelove:((((((Kadi)))))):circlelove: Sorry, but glad you are here with us.:)

I am afraid of Tysabri for myself and all of you, but I support your decision for treatment, whatever it my be. Just make sure that your Doc takes all the precautions and completely informs you of all and any dangers..:cool:

Sorry you're officially a member of our club...let us know what the doc said...:grouphug: