advertisement
Reply
 
Thread Tools Display Modes
Old 12-19-2011, 04:32 PM #1
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default "Acute" MS Now Covered Under SSDI Compassionate Allowances

http://www.msfocus.org/news-details.aspx?newsID=200
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (12-19-2011)

advertisement
Old 12-19-2011, 05:42 PM #2
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

Malignant MS...is that a terminal form?
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-20-2011), SallyC (12-19-2011)
Old 12-19-2011, 05:47 PM #3
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

I'd never heard that term used before until I read this, Debbie. It's a little scary........
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (12-19-2011)
Old 12-19-2011, 08:11 PM #4
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Default

Usually when the term Malignant MS is used it is referring to MS variants such as Marburg's.
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (12-19-2011), Kitty (12-20-2011), SallyC (12-19-2011)
Old 12-19-2011, 08:31 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Snoopy is right Marburgs is the Extreme MS that is usually fatal. Only about less than one percent of MSers have this variant, however, so very rare. The Old Chronic Progressive type of MS, which puts you in a bed and a nursing home pretty fast, may also be a part of this?

Don't worry, none here that I know of are suffering from either of these variants of MS..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (12-19-2011), Kitty (12-20-2011)
Old 12-19-2011, 09:27 PM #6
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

I read about "Marburg" MS a while back, and I seem to recall 'sudden onset' and fatal within 6 months to 1 year following onset, but it's been a while since I learned about it a bit.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (12-20-2011), SallyC (12-19-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
approved for "SSDI"but my case is still open! don1956 Social Security Disability 3 12-23-2011 11:16 AM
young, need ssdi, but might "fall through cracks" SnowWhyte Reflex Sympathetic Dystrophy (RSD and CRPS) 7 11-11-2011 11:39 AM
compassionate allowances for SSDI chasmo Parkinson's Disease 2 10-28-2008 02:58 AM
ALS "Lou Gehrig's Disease" to now be covered as a service connected disability BobbyB ALS News & Research 0 07-15-2008 11:16 AM


All times are GMT -5. The time now is 01:27 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.