advertisement
Reply
 
Thread Tools Display Modes
Old 12-17-2011, 01:22 PM #1
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default MS and Lupus

I have a friend that has been sick for a long time with all the MS symptoms that we generally have. She found a neurologist that dx her with MS.

Well this past week she was so ill, that they sent her to the ER for bloodwork. Her ANA was high, she said the doc told her she has Lupus. I asked her, does that mean you don't have MS? She said she was so upset, that she didn't ask any questions.

What do you all think? Since most of the symptoms are the same or similar, and now a positive ANA.

Can you have both MS and Lupus?
__________________
Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
daisy.girl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (12-19-2011), SallyC (12-17-2011), tkrik (12-17-2011)

advertisement
Old 12-17-2011, 02:15 PM #2
karilann's Avatar
karilann karilann is offline
Member
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
karilann karilann is offline
Member
karilann's Avatar
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
Default

You can have both MS and Lupus.

She needs to ask about the MS diagnosis and be clear as to whether she met all the criteria for a clear diagnosis. MS has distinctive lesions on the brain.

Lupus is Rheumatoid while MS is Neurological
__________________

.
If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice.
.
karilann is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (12-17-2011), dmplaura (12-19-2011), SallyC (12-17-2011)
Old 12-17-2011, 02:33 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Sorry about your friend, Daisy. It really sucks if she has both..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (12-17-2011), dmplaura (12-19-2011)
Old 12-17-2011, 03:15 PM #4
Snoopy's Avatar
Snoopy Snoopy is offline
Magnate
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Snoopy Snoopy is offline
Magnate
Snoopy's Avatar
 
Join Date: Sep 2006
Posts: 2,280
15 yr Member
Default

Quote:
Originally Posted by daisy.girl View Post
Can you have both MS and Lupus?
Yes, you can have both MS and Lupus. Several years ago my son had a girlfriend whos mother has both MS and Lupus.
__________________
Dx RRMS 1984
Snoopy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (12-17-2011), dmplaura (12-19-2011)
Old 12-17-2011, 03:41 PM #5
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default

Thanks guys....

She has two lesions on the brain, but she also has had years of severe migraines. I do not know where her lesions are located. She doesn't ask questions or request paperwork. We are very different, I want a copy of every note, lab, or test that I have had.

She is scheduled to see a rheumatolgist in the next week or so.
__________________
Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
daisy.girl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (12-19-2011), SallyC (12-17-2011)
Old 12-17-2011, 07:17 PM #6
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
Default

I have MS, my older sister Lupus. daisy I agree 110% with copies of everything.
EddieF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (12-17-2011), dmplaura (12-19-2011), Lynn (12-19-2011), SallyC (12-17-2011)
Old 12-17-2011, 08:50 PM #7
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

Yes, you can have both MS and Lupus. And I may or may not be an example of that.

A positive ANA does not automatically mean Lupus as well as other autoimmune disease. There is a series of tests that need to be run as well to determine what is going on and to make a dx. The results take some time. I know many people who have had a positive ANA and upon further testing, ended up not having anything. I had a negative ANA but am positive for one of the Lupus tests that I had done. Go figure. But, it is my understanding that is not uncommon with Lupus either. I have not been to the rheumy to confirm that dx - I go after the holidays for that appointment. But, I will say that the symptoms I am having that caused me to get all these blood tests done are not the same symptom I get with my MS. They are 2 separate sets of symptoms that sometimes occur at the same time. But, like MS, Lupus can be difficult to diagnose and can take quite a while to dx.

I wish your friend the best and hope she starts feeling better soon.
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (12-17-2011), dmplaura (12-19-2011), SallyC (12-17-2011)
Old 12-17-2011, 10:50 PM #8
jackD's Avatar
jackD jackD is offline
Member
 
Join Date: Jan 2008
Location: Maryland outside WASH DC
Posts: 258
15 yr Member
jackD jackD is offline
Member
jackD's Avatar
 
Join Date: Jan 2008
Location: Maryland outside WASH DC
Posts: 258
15 yr Member
Default High MS activity = high ANA test results

During periods of high MS lesion acivity the ANA scores will be elavated.

In fact it has been proposed that the high ANA might be a good indicator of "active" lesions.

It would be a lot cheaper than a MRI.

jackD


Neurology. 1997 Sep;49(3):857-61.

Frequency and significance of antinuclear antibodies in multiple sclerosis.

Collard RC, Koehler RP, Mattson DH.
SourceDepartment of Neurology, University of Rochester School of Medicine and Dentistry, NY, USA.

Abstract
In a prospective sample of patients with multiple sclerosis (MS) we found a high frequency of antinuclear antibodies (ANA), 22.5%, confirming results from previous studies. ANA occurrence did not correlate with gender, age, duration of MS, MS course, or disability in either the prospective and retrospective samples of MS patients.

In 16 patients with MS tested at two time points, ANA occurrence did correlate with MS disease activity.

This suggests that the high frequency of ANA in MS reflects ongoing immune dysregulation.

Comment in
Neurology. 1998 Aug;51(2):650.
PMID:9305354[PubMed - indexed for MEDLINE]
__________________
As God is my witness, I really thought turkeys could fly!
(WKRP in Cincinnati)

Last edited by jackD; 12-18-2011 at 12:27 PM. Reason: added abstract
jackD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (12-18-2011), dmplaura (12-19-2011), EddieF (12-18-2011), SallyC (12-18-2011)
Old 12-18-2011, 08:31 AM #9
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default

thanks Jack...

that makes sense then. during her MS workup all her bloodwork was normal including the ANA, but during this severe period of arm pain and weakness when they drew blood, her ANA was high.

Time will tell, oh how I wish there was a test for MS!!
__________________
Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction
daisy.girl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (12-19-2011)
Old 12-19-2011, 03:32 AM #10
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

Quote:
Originally Posted by EddieF View Post
I have MS, my older sister Lupus. daisy I agree 110% with copies of everything.
I have MS, and my elder sister (and niece) has Lupus, too.

Ugh - I hate to think of poor people trying to cope with both Dx. I hope your friend is not facing the pair of them.

Encourage her to document and EVERYTHING.

Cheers

Lyn
__________________
Lyn
.



Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
daisy.girl (12-19-2011), dmplaura (12-19-2011), EddieF (12-19-2011)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
lupus and rsd ?? hannah1234 Reflex Sympathetic Dystrophy (RSD and CRPS) 8 08-13-2011 11:34 AM
Lupus Pepe Myasthenia Gravis 11 09-10-2009 06:47 AM
Lupus?? Pepe Myasthenia Gravis 25 08-22-2009 02:40 PM
anybody have lupus and MG BARBARA356 Myasthenia Gravis 5 05-07-2009 07:42 AM
lupus Narelle New Member Introductions 0 10-25-2007 12:25 AM


All times are GMT -5. The time now is 03:21 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.