yikes, Judy. Can't add anything to the discussion except for tea and sympathy.

Thanks to all of you for the support and understanding. I'm really thankful for my family here since you're the ones who "get it"!! My MS-brain won't remember who said what without looking back, but to a couple I do remember.........

Jack -- Holey Moley!!! You've really done your research! Thanks for sharing....it will take a few days to wrap my head around all that info.

Kicker -- Our legs sound similar, I've been "sitting" for almost 6 years. I do the bathroom transfer thing with the grab, pivot, slide feet backward too. Isn't it amazing how much the "tops" of our feet can swell? Never had such a problem before MS.

Sally -- I'm scheduling some physical therapy with the home nurses, mainly stretching and moving my legs. It doesn't help much with the swelling, but it feels good and allows my legs to move slightly better. My insurance will cover it as long as they're coming to care for my legs.

I did have an appointment this past Wednesday with a new neuro who replaced my former doc who retired. Finally have an MS "Specialist"!!!! YAY! As to the edema, there isn't anything else that can be done since it isn't the usual "water" making things swell. Elevating my legs as much as possible does help some.

One of the things we spoke about was my constant nerve pain. Of course there is NOTHING else he can give me for it. I know nerve pain is difficult to treat and along with the fact that I take Coumadin (blood thinner for atrial fibrillation) and Zoloft, eliminated a couple possible drugs, swelling legs, blah, blah, blah, there were no other possibilities to try. So guess I'll just stick with two Aleve a day which kind of takes the edge off.

Also spoke about bladder issues............but that's a story for another day!

Judy,
Aw, I'm so sorry to hear this...like MS hasn't taken enough from you...
prayers for you, and hope you can find healing and relief...

Judy, I'm glad you have a new Neuro you like and that you are having some in home PT. Well my prayers have been answered, the rest is up to you..

Kick their butts and feel better.