advertisement
Reply
 
Thread Tools Display Modes
Old 02-02-2012, 08:48 AM #1
sherric sherric is offline
New Member
 
Join Date: Feb 2012
Posts: 4
10 yr Member
sherric sherric is offline
New Member
 
Join Date: Feb 2012
Posts: 4
10 yr Member
Default Anyone else feel this?

I have had the vertigo and physical therapy for it, but it DOES NOT go away, just less on some days. BUT, even though I've had the 'normal' type vertigo...where I lay down and my world literally starts spinning, I also have this very strange sensation when I am walking. I call it "floating brain" because that's the only way i know how to discribe it. It literally feels as though my brain is floating back and forth (NOT spinning dizziness) just really strange. I see the look on some people's faces (doctor's included) when I describe this feeling, as if they are thinking ?what? does that mean? I just don't know how else to describe it. They say there are two types of vertigo...the type where everything literally spins and the other type where you feel 'faint' (I've never felt as though I was going to faint...not sure what that would feel like), but nonetheless this strange feeling does not hit me unless I am walking more than, I would say about 10 feet. If I'm in the house or office, I don't feel it.....as soon as I get outside I do.....anyone else out there have this or am I losing it?
sherric is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (02-02-2012), Dejibo (02-02-2012), Jappy (02-03-2012), karilann (02-02-2012), Kitty (02-02-2012), Lynn (02-03-2012), SallyC (02-02-2012)

advertisement
Old 02-02-2012, 09:02 AM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Yes!! In fact I'm having it now. I feel like I'm not really "grounded" if that makes any sense. And yes, it's much worse outside. I truly believe only another MSer can understand what we're talking about. Wish I could find a good Neuro that actually has MS (not that I'd wish it on anyone) so they'd know what I'm describing.

Oh, and welcome to NeuroTalk! Sorry you're having problems with vertigo but you'll find lots of support here.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (02-03-2012), Jappy (02-03-2012)
Old 02-02-2012, 09:06 AM #3
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

Yes! me too!
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (02-03-2012)
Old 02-02-2012, 09:08 AM #4
sherric sherric is offline
New Member
 
Join Date: Feb 2012
Posts: 4
10 yr Member
sherric sherric is offline
New Member
 
Join Date: Feb 2012
Posts: 4
10 yr Member
Default

Quote:
Originally Posted by Kitty View Post
Yes!! In fact I'm having it now. I feel like I'm not really "grounded" if that makes any sense. And yes, it's much worse outside. I truly believe only another MSer can understand what we're talking about. Wish I could find a good Neuro that actually has MS (not that I'd wish it on anyone) so they'd know what I'm describing.

Oh, and welcome to NeuroTalk! Sorry you're having problems with vertigo but you'll find lots of support here.
THANK YOU....I'm not crazy! It's the strangest feeling....almost as if I lifted my legs I could fly, LOL!! Gotto get a laugh somehow!
sherric is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (02-03-2012), Kitty (02-02-2012)
Old 02-02-2012, 11:45 AM #5
karilann's Avatar
karilann karilann is offline
Member
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
karilann karilann is offline
Member
karilann's Avatar
 
Join Date: Sep 2006
Location: Northern Michigan...Upper Peninsula
Posts: 625
15 yr Member
Default

No you are not crazy. This is the same exact "floating" feeling I complained about for YEARS! A low dose Ativan helped me a lot. (.05 mg). My Neuro suggested it and said she had a lot of her M.S.ers complain about this feeling and the low dose Ativan helped.
At first I thought she was blowing me off as some type of anxiety (which it will cause you to feel as well as phobia as you may become afraid of it). However; the ativan for a couple of days seems to break the cycle of the feeling. Hope your doc will agree and let you try it. I don't take it everyday....just when I feel I am having a hard time. When I get the floating feeling....I can't drive. The ativan has given me back my driving.

I know the feeling is not debilitating, but disturbing and makes you feel like you are crazy. Bless you for posting your concern because many of us feel "nuts" and its comforting to share common experiences.
__________________

.
If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice.
.
karilann is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (02-03-2012)
Old 02-02-2012, 01:50 PM #6
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Welcome Sherric, nice to meet you.

I used to have that floaty feeling a lot and had vertigo too, in my earlier RRMS days.

I'm not suprised that you received a bunch of "me toos" here. It's not an unusual symptom. If your Neuro looks at you like you're crazy, you need a new MS Neuro.

Glad you decided to join us.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (02-03-2012)
Old 02-02-2012, 02:51 PM #7
sherric sherric is offline
New Member
 
Join Date: Feb 2012
Posts: 4
10 yr Member
sherric sherric is offline
New Member
 
Join Date: Feb 2012
Posts: 4
10 yr Member
Default

Quote:
Originally Posted by SallyC View Post
Welcome Sherric, nice to meet you.

I used to have that floaty feeling a lot and had vertigo too, in my earlier RRMS days.

I'm not suprised that you received a bunch of "me toos" here. It's not an unusual symptom. If your Neuro looks at you like you're crazy, you need a new MS Neuro.

Glad you decided to join us.
Thanks Ladies for the responses. I FEEL VALIDATED! Problem is....I haven't gotten an MS diagnosis yet. It's been years. I've been diagnosed with fibromyalgia (8 years ago), chronic fatigue, degenerative disk disease, carpal tunnel, a pituitary tumor and on and on and on!!! I truly believe it's MS. This whole floaty feeling began about 2 months ago. I tried to explain it to my GP...he didn't understand, put me on meclazine...which does help some with the actual vertigo when I lye down, but I still have the "floaty feeling". My pulse rate was at 50 when experiencing these, so he decided to send me back to the cardiologist (I say back because I went before for a low pulse rate, went through all the test and even had a heart cath....all was normal) the cardiologist at that time said I just have a normal low pulse. SO.....when I went last week to the doctor and again this week they decided I should see the neurologist once again and the cardiologist. I fully believe the cardiologist is waste of time, BUT am worried because the neurologist I am seeing is one I seen before who totally dismissed the MS diagnosis because there were no lesions on my MRI. I now see where 5% of people with MS show no lesions on MRI's and wonder if she will listen to me. It's frustrating and as I said it has been YEARS. Granted, no one wants a diagnosis of MS, BUT I must say I'd be glad to hear it simply because it not only validates what I've gone through but I'd finally be able to educate myself properly and fight the damn thing.

Thanks again for the responses, it truly lifts my spirits!
sherric is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jappy (02-03-2012), karilann (02-03-2012), SallyC (02-03-2012)
Old 02-03-2012, 12:13 AM #8
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
jacksonsmommy jacksonsmommy is offline
Junior Member
 
Join Date: Aug 2008
Posts: 85
15 yr Member
Default

I think they call it disassociation. I have also had it. Totally normal for MS.
jacksonsmommy is offline   Reply With QuoteReply With Quote
Old 02-03-2012, 01:26 AM #9
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

The way I described the floaty feeling to someone who's a non-MSer is to ask them if they've ever taken Sudafed or Actifed (before the government took the good stuff out of those cold/allergy medications because of meth-heads) If you've ever taken Sudafed and after that stuff kicks in, it makes your head feel...floaty. Like you just disconnected your head from your neck and it's floating above your shoulders.

That's exactly what that floaty "vertigo" feels like to me, altho it's a lot more disturbing than the feeling Sudafed gives me. But, it was the only way I could really describe it to a non-MSer and have them get some idea of what it felt like.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lynn (02-03-2012), SallyC (02-06-2012)
Old 02-03-2012, 05:02 AM #10
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

I haven't experienced anything like this for a long time, but I remember that 'disconnected' feeling well - especially in really hot weather. I recall that it felt like I had mentally 'turned inwards' and my brain was focused on getting me somewhere - I had no idea how I got from A to B - just as long as I did. I would pass people that I knew and have no awareness of them and I had tunnel vision and this strange self-protective haze around me.

I don't know if this is the same thing, but I do get what you are saying. I hope you can find some answers.

Regards

Lyn
__________________
Lyn
.



Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (02-03-2012), SallyC (02-03-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
How Does Everyone Feel? SallyC Multiple Sclerosis 152 08-01-2011 06:43 PM
How do I feel debw Multiple Sclerosis 13 04-06-2010 02:49 PM
What does a LSB feel like? catra121 Reflex Sympathetic Dystrophy (RSD and CRPS) 6 01-29-2010 11:51 AM
To Feel or Not to Feel-That is the Question! Friend2U Multiple Sclerosis 26 02-19-2008 05:25 PM
Why am I feel alone WishingUponKnowledge Depression 11 02-25-2007 02:07 AM


All times are GMT -5. The time now is 06:12 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.