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02-02-2012, 08:48 AM | #1 | ||
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I have had the vertigo and physical therapy for it, but it DOES NOT go away, just less on some days. BUT, even though I've had the 'normal' type vertigo...where I lay down and my world literally starts spinning, I also have this very strange sensation when I am walking. I call it "floating brain" because that's the only way i know how to discribe it. It literally feels as though my brain is floating back and forth (NOT spinning dizziness) just really strange. I see the look on some people's faces (doctor's included) when I describe this feeling, as if they are thinking ?what? does that mean? I just don't know how else to describe it. They say there are two types of vertigo...the type where everything literally spins and the other type where you feel 'faint' (I've never felt as though I was going to faint...not sure what that would feel like), but nonetheless this strange feeling does not hit me unless I am walking more than, I would say about 10 feet. If I'm in the house or office, I don't feel it.....as soon as I get outside I do.....anyone else out there have this or am I losing it?
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02-02-2012, 09:02 AM | #2 | |||
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Wisest Elder Ever
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Yes!! In fact I'm having it now. I feel like I'm not really "grounded" if that makes any sense. And yes, it's much worse outside. I truly believe only another MSer can understand what we're talking about. Wish I could find a good Neuro that actually has MS (not that I'd wish it on anyone) so they'd know what I'm describing.
Oh, and welcome to NeuroTalk! Sorry you're having problems with vertigo but you'll find lots of support here.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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02-02-2012, 09:06 AM | #3 | |||
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Elder
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Yes! me too!
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | Jappy (02-03-2012) |
02-02-2012, 09:08 AM | #4 | ||
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Quote:
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02-02-2012, 11:45 AM | #5 | |||
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Member
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No you are not crazy. This is the same exact "floating" feeling I complained about for YEARS! A low dose Ativan helped me a lot. (.05 mg). My Neuro suggested it and said she had a lot of her M.S.ers complain about this feeling and the low dose Ativan helped.
At first I thought she was blowing me off as some type of anxiety (which it will cause you to feel as well as phobia as you may become afraid of it). However; the ativan for a couple of days seems to break the cycle of the feeling. Hope your doc will agree and let you try it. I don't take it everyday....just when I feel I am having a hard time. When I get the floating feeling....I can't drive. The ativan has given me back my driving. I know the feeling is not debilitating, but disturbing and makes you feel like you are crazy. Bless you for posting your concern because many of us feel "nuts" and its comforting to share common experiences.
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . |
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"Thanks for this!" says: | Jappy (02-03-2012) |
02-02-2012, 01:50 PM | #6 | |||
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In Remembrance
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Welcome Sherric, nice to meet you.
I used to have that floaty feeling a lot and had vertigo too, in my earlier RRMS days. I'm not suprised that you received a bunch of "me toos" here. It's not an unusual symptom. If your Neuro looks at you like you're crazy, you need a new MS Neuro. Glad you decided to join us.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Jappy (02-03-2012) |
02-02-2012, 02:51 PM | #7 | ||
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Thanks again for the responses, it truly lifts my spirits! |
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02-03-2012, 12:13 AM | #8 | ||
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Junior Member
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I think they call it disassociation. I have also had it. Totally normal for MS.
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02-03-2012, 01:26 AM | #9 | |||
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Elder
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The way I described the floaty feeling to someone who's a non-MSer is to ask them if they've ever taken Sudafed or Actifed (before the government took the good stuff out of those cold/allergy medications because of meth-heads) If you've ever taken Sudafed and after that stuff kicks in, it makes your head feel...floaty. Like you just disconnected your head from your neck and it's floating above your shoulders.
That's exactly what that floaty "vertigo" feels like to me, altho it's a lot more disturbing than the feeling Sudafed gives me. But, it was the only way I could really describe it to a non-MSer and have them get some idea of what it felt like.
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02-03-2012, 05:02 AM | #10 | |||
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Member
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I haven't experienced anything like this for a long time, but I remember that 'disconnected' feeling well - especially in really hot weather. I recall that it felt like I had mentally 'turned inwards' and my brain was focused on getting me somewhere - I had no idea how I got from A to B - just as long as I did. I would pass people that I knew and have no awareness of them and I had tunnel vision and this strange self-protective haze around me.
I don't know if this is the same thing, but I do get what you are saying. I hope you can find some answers. Regards Lyn
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Lyn . Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993. |
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