I started this journey with numb toes. It feels as if, for instance, when I would rub my toes against DH's leg, I would ask him why he was wearing socks to bed...he wasn't. That's the way it feels to me.
I still get pain in the numb parts, mainly neuropathic in nature. But it is a weird feeling...numb, but not really...

I think you are talking about what they refer to as "altered sensation". I used to describe the feeling as "numb" but it actually was not. I like to say it feels like my leg is wearing a rubber glove. I feel it, but the total natural sensation is missing.

I often get that 'glove' sensation on my hands - lack of feeling, cant' distinguish heat or texture.

I also get a funny feeling in my leg/s (mostly left) that feels like it has been wrapped in constrictive bandages. In my left foot, I can't tell the difference between sharp and blunt - although I am aware of pressure.

It is also my left calf that is stiff and hurting when I walking lately.

Funny, most of my stuff happens on my left side to a greater degree. Even my vision has remained much worse in my left eye, and that is the one that still has nystagmus and double vision.

Irritating though, because I am VERY left-handed! Does it tend to hit your dominant side harder?????

Regards

Lyn

My MS weak side is my left side, but luckily I'm very right handed. A friend has right side weakness and she is right handed. She had to change her mini's gas pedal to the left side.

Lynn - I'm a righty and most of my trouble is on the left side. I am severely impaired on my right hand but I don't notice it at all. It shows up on testing though and they told me that my brain has rewired so I am still able to use that hand. Otherwise, I wouldn't. I don't know how this relates to lesion load but most of my lesions are on the left side, which you would think my right side would be worse.

I don't know, I guess I just wondered because one of my friends (an older gentleman who is badly MS affected) mentioned that theory to me (about being worse on your dominant side).

As far as lesion load goes, all of my lesions seem to be fairly evenly dispersed.

Interesting though, thanks for your input.

Lyn

Sometimes it's tingling. Sometimes it's a lack of sensation that is also an almost painful coldness. Not ordinary coldness but as if my bones are cold.

This probably doesn't make much sense.

Other times it's as if a part of me "isn't there." Sometimes my upper left side hasn't existed. I would look at it and think it wasn't mine. I couldn't move it either. I've had this with the left side of my face too.

Never a dull moment with this.

This is definitely a tough one---thanks for posting this b/c now I don't feel like such an idiot for not being able to describe it

I've just begun to have problems with "numbness" in my left arm and leg--which fluctuates from tingling stiffness to and ice cold "burning. It is generally a weird feeling which makes it very difficult to walk b/c I don't feel my leg hitting the ground right:

Thanks so much for this B2Y - the article was fascinating and made me feel so much more sane than I do when I try to explain this stuff to others

Thanks for sharing!


That is me!! Finally a way to describe it!!

Don't know why that excites me...lol

Cindy