Hoping everything went well for you today, Dej. Let us know how things went.

My vision still sits at 20/400 and the eye surgeon here got NONE of the reports from the big girl hospital that I was in for my huge ON attack. She was quite upset. I told her they tried hard to convert me to their practice, and I DEMANDED to be returned to her service. She wants to take the next couple of days to hunt down the files, go over the tests, find out the impressions, and opinions of her colleges and then get back to me.


She was thrilled that I have already been working with the blind society, and was more than happy to fill out my paperwork for the doggie. She will also fax over the info needed to the blind society to release whatever they will, as she has certified me as "legally blind" she wanted to warn me that she is a mandatory reporter to the DMV and I will have my license removed. (like I could find the car) and that after she has a chance to pour over the results she will call me and we can discuss where we go from here.

As she entered the room I was in a downpour of tears with DH hanging onto me telling me it was going to be ok. I had simply reached my limit of fatigue, frustration, and tolerance. She was so sweet to sit and hear us both out about what we had been thru.

She was as gentle as possible when viewing the tip end of the optic nerve, and knew what she was doing was painful. I was pleased that she was aware of that. I knew that she had to hurt me to look, but just the fact that she appreciated that helped.

So...I will tell you what I know when she calls back. For now the optic nerve appears to be healing, but she told me that "some get their vision back, some dont. at 8 weeks post attack, its unlikely, but stranger things have happened." so...thar ya have it.

If you are showing healing...I would definitely investigate
remyelination supplements!

People do vary in how they process various nutrients. This is a genetic thing.

There are several MS sites with remyelination suggestions and I would definitely do some. They are MORE likely to help than that electrical device you are considering and they are MUCH less expensive!

Just wanted to send you some big after the rough day. Hoping for the best.

Take the supplements and eat your veggies! If they are healing they might get much better. Eight weeks is only a general estimate anyway isn't it?

What are remyelination supplements??

I already take suppliments and eat well.

I take B12, D3, E, A, B complex. I have a well balanced diet, and I am doing the very best I know how to do. I will be seeing the naturpathic person very soon who will add even more to my plate. Just the fact that I went from shrunken and shriveled to much better looking says something in my favor.

I just want someone to answer me "will I get my sight back?" and so far, no one can say yes, or no. Everyone says maybe. UGH!

The B12 should not be cyano version. Cyano has shown to
actually cause a form of optic nerve damage, called Leber's.
These patients cannot metabolize the cyanide portion.

The one to get is methylcobalamin, the active form and you need at least 1000mcg daily to absorb 1% of that. 5000mcg would be better. This is available easily at Amazon, iherb.com, Puritan's.
I use the Puritan's now myself after testing it out by having blood work after 3mon on it...and it is very efficient. When B12 is taken orally it should be on an empty stomach as it is not well absorbed when food is present.

It costs pennies a day... between .20 and .30 cents depending on which sale you take advantage of.

There are studies at PubMed showing poor B12 levels in the spinal fluid of MS patients. Since B12 moves into the CSF
by a concentration gradient, having higher blood levels insure better movement into nerves and the brain.
These are only two articles of several on PubMed.

Remyelination (which is repair of damaged myelin of nerves),
is accomplished with Omega-3 fats, B12, folate, B6.
B12, folate and B6 now are available as ACTIVE forms inexpensively at many on-line sources. And are preferred.
Active forms in red:
B12 (methylcobalamin)
B6 (P5P aka pyridoxal 5 phosphate)
Folate (methylfolate aka MetaFolin)

All three are over the counter.

There are sites now on the net specifically for MS patients, and the list of supplements on them is much longer. These four
are the CORE nutrients that help myelin regeneration.

Here is one article on cyanide metabolism and optic neuritis:
I am including this information today for all MS readers here.
Some of you including Dej may already know this.

Dej - So glad you had a compassionate dr. That can make all the difference in the world. I'm also glad there is some improvement. Some is better than none. I hope things continue to improve for you. Keeping you in my prayers.