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Old 02-25-2012, 10:37 PM #11
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My first neuro was a condescending jerk and I fired him after two appointments. Find yourself a better neuro, you deserve it.
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Old 02-26-2012, 09:05 AM #12
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I've said it before and I'll say it again:

Some people need a pat on the head......with a hammer.

Find another doc, sweetie. His attitude is unacceptable.
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Old 02-27-2012, 01:43 PM #13
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I'm going on Wednesday morning for my brain and spine MRI. With and without contrast. Let's hope there are no more holes in my head.

I'm hoping the Neuro will let me know the results over the phone....because I'm not going back to see him.

After this MRI scan is complete and I know he has the results I'm going to request copies of my records and scans. I'm looking for a new doctor before y next appointment is due.
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Old 02-27-2012, 03:36 PM #14
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Kel...Poor hon sounds like your neuro got the added letters to his MD degree...A.!.S.*&#$...

I think you need to take your DS with you next time. I bet he won't talk to you like that then...or if he did, have your DS ask him who the he77 he thinks he is...

Grrr....wish I were closer to you. I"D go with ya...

Definitely get another doc...
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Old 03-02-2012, 08:33 PM #15
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Got a call from the nurse today. They received my MRI results and the doctor had reviewed them. She said that he had written "multiple enhancing new lesions. Advised to resume Betaseron therapy ASAP."

So, I have more lesions than I did before. I knew I probably would. This makes me wonder if the LDN I'm taking is doing me any good. When I stopped taking it for my surgery I didn't take it for a couple of weeks and didn't notice one way or the other. It's time for me to refill my prescription but I'm having doubts about it now. Plus, I'm wondering if the surgery caused this flare up I'm supposedly in right now.
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Old 03-02-2012, 09:42 PM #16
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Default Hi Kitty

Sorry to hear that there are more things on your MRI to worry about. Are you going to keep this current Neruo? You are in my prayers kitty. Please be good to yourself. I also hope there is other medications that may help you since your current one you are calling into question. ginnie
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Old 03-03-2012, 12:00 AM #17
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Quote:
Originally Posted by Kitty View Post
Got a call from the nurse today. They received my MRI results and the doctor had reviewed them. She said that he had written "multiple enhancing new lesions. Advised to resume Betaseron therapy ASAP."

So, I have more lesions than I did before. I knew I probably would. This makes me wonder if the LDN I'm taking is doing me any good. When I stopped taking it for my surgery I didn't take it for a couple of weeks and didn't notice one way or the other. It's time for me to refill my prescription but I'm having doubts about it now. Plus, I'm wondering if the surgery caused this flare up I'm supposedly in right now.
Did you do ok on Betaseron? If so, then I hope you'll start it again soon. LDN is for symptom relief isn't it? I've never heard of anyone using it as a disease modifying drug, or that it works that way. Take care sweetie.
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Old 03-03-2012, 12:14 AM #18
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Kelly, a Gals gotta do what a Gals gotta do. If Beta worked for you then get back on it. LDN is not keeping your MS quiet. I'm going to stay on it because I feel better on it and being SPMS, I really don't have another choice.

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Old 03-03-2012, 01:02 AM #19
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Finding a good doctor is so hard! It's like dating, the first date may go well and them bomb on date 3 or 4. Or date 1 they sound good but never follow through or ring back when they should.....

Finding the right one is important though!

And I had horrible reactions to the interferons. Now they think I don't have MS but those things where vial to my system

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Old 03-03-2012, 05:24 AM #20
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Hi Kitty

I am so sorry to hear that you are having so much trouble with a jerk of a doc and with new lesions to boot. Have you considered Ty? I know there is a serious (although rare) risk attached to it, but it has done wonders for me.

After 8 years and horrible side effects on Beta, I now have none with Tysabri and it is keeping things quiet. Just a thought.

I hope you can find someone more sensitive to help you. Bottom line is, no matter what someone says, unless you have this disease, you have no idea what it's like. Even for me, I am very lucky, so I can only imagine how hard it is for those who have it really bad.

Regards

Lyn
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