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02-29-2012, 09:35 AM | #1 | |||
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Mine is almost always constant, if I go 5-8 hours with out a nap I have accomplished something! I am The Sleeper! What little energy I have just disappears and I need to lay down or fall down.
It`s not like I spend any real time standing anyway, but when I start to lean sitting in a chair it`s nap time. Sometimes I don`t even sleep, I just need to be horizontal. On the bright side? it`s better than dead!
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02-29-2012, 09:46 AM | #2 | |||
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02-29-2012, 03:56 PM | #3 | |||
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My onset wasn`t until my early 50`s and I saw enough of life to know there are no guarantees. I had family members and friends die way before their time, some never really had a chance to know or guide their kids. I got to see mine graduate from High School, I have one in college now that I help and another that lives at home I can try to steer in a good direction in life. I had my fun prior to my illness, for me this is just another bump in the road of life, I try to laugh at them all. I don`t spend much time feeling sorry for myself. http://www.youtube.com/watch?v=BXWvKDSwvls
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02-29-2012, 04:19 PM | #4 | |||
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My sentiments exactly.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | Blessings2You (02-29-2012), SallyC (02-29-2012) |
02-29-2012, 05:01 PM | #5 | |||
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You know, even though fatigue is arguably my "worst" sympton, I would rather have that than some of the symptoms many of you suffer, given the choice (which I'm not).
I'm retired, my kids have grown up, I can sleep and loaf around all I want, pretty much. I hate it a lot more when I don't compare it to other stuff.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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03-06-2012, 05:24 PM | #6 | ||
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How I wish I could accept my fatigue and go with it. Most days I wake up and try to plan when I could possibly go back to lie down again. But life gets in the way and I have to get stuff done.
On a work day the morning is spent on the sofa before setting off at 2pm til midnight. Then the next couple of days are sleepy days. I'm getting SICk of it all. |
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03-07-2012, 11:19 AM | #7 | |||
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Usually my fatigue is related to overdoing, and could usually be alleviated by some down time, but the last few months it has gotten to be way too constant. My fatigue right now is to the point of freaking ridiculous. If I take my medicine to keep me awake at work, I'm totally wrung out and useless by the time I get home.
This spring, my 15 year old is doing both lacrosse and track, so that means lots of running around after work. I swear I just get more and more tired and less functional. My hubby is a restaurant manager, so he is often gone in the evenings and it all falls to me. Last night he was off, so he did all the running around and I took a nap and then laid in bed watching TV all evening. Am I all refreshed and great this morning? No! I am seriously pi$$ed that I still feel like dog poo. Even last year I could keep up. I seriously need to figure this out. Maybe it is a flare?? I haven't felt this bad in years. I've actually been toying with the idea of asking for IVSM because I remember when it was this bad before and how the fog of fatigue actually lifted.
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Dx: CNS Demyelinating Disease (2005) Take me back to days full of monkeyshines Bouncin' on a bubble full of trouble in the summer sun Keep your raft from the riverboat Fiction over fact always has my vote And wrinkles only go where the smiles have been... Jimmy Buffett from "Barefoot Children in the Rain" . |
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