[Blessings2You]

It's been over six years since my diagnosis, but I don't think I'll ever get over that nearly two-year limbo period. I thought I'd lose my mind. I have great empathy for those who live in limbo even longer, or perhaps still don't have a diagnosis.

One thing I "learned" was NOT to use the term "Probable MS", even though it's a correct term. I learned to say that "the neurologist believes it is MS" or something like that. People heard "probable MS" as a self-diagnosis, or perhaps not "real" MS. Go figure.

[SallyC]

I was lucky. One Summer, one Neuro, one hospital stay and 36 yrs ago, I was DXed.

Went thru a bit of iffy stuff with my PCP, but even he suspected MS and the Neuro confirmed it.

[misshayleesmom]

10 yrs for me and not yet dx.. although ER doc says MS/ PCP no MS/yes MS depending on who he's talking to... in a wheelchair... still can't walk been like this since Jan

Cindy

[Debbie D]

Cindy, that is so weird considering how quickly they put patients on a DMD with an isolated clinical whateveryoucallit...

Hope you get some certainty soon...it can be crazy feeling like carp and not getting an answer...

[new2net98]

in the vortex now...it's gonna be a happier day, when that "tricorder" becomes available...of course, then some hospitals/docs will go out of business. LOL, just thought I'd put a lighter spin on it...

for those of us still in the drink...

[SallyC]

Cindy, I actually had MS symptoms 12 years prior to my seeking a DX.

[Koala77]

Originally Posted by SallyC

I was lucky. One Summer, one Neuro, one hospital stay and 36 yrs ago, I was DXed.

Went thru a bit of iffy stuff with my PCP, but even he suspected MS and the Neuro confirmed it.

Sally.... you've been peeking at my records, haven't you?

After a few months of odd symptoms my physician diagnosed me but to be absolutely sure he got me an appointment with a neurologist that very day, and I had my diagnosis. They used the McDonald Criteria back then so I had to wait 20 years until it was properly confirmed with a MRI.

That was 35 years ago, so you beat me by 12 months.

[SallyC]

LOL, we are the evil twins of MS, Koala..

[Blessings2You]

I am one of those who was, in large part, RELIEVED to be diagnosed with MS. I was worried about an inoperable brain tumor, Alzheimer's (because of the memory/cognitive stuff), ALS, and a few other nasty birds.

A few days before my diagnosis I was sobbing like a big baby, saying to my husband, "I know there's SOMETHING wrong with me--if they say it's not MS, that means I'm (sob sob sob) INSANE!!!" (I was a basket case)

My dad (who passed away about 7 years before my diagnosis) had MS for about 40-some years, and no one would have guessed it. So although I was realistic about what MS COULD do, I also knew I had a better chance with an MS diagnosis than with some others.

I'm not dissing those of you with severe disability; just saying that my own personal deal was that I was relieved. I can't imagine going without a diagnosis.