NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Home From Hospital . . . (https://www.neurotalk.org/multiple-sclerosis/166537-home-hospital.html)

Blessings2You 03-15-2012 05:50 AM

Sorry you had to go through that miserable experience!! My stomach does flip-flops just hearing the word "morphine". I've never had steroids (not IV anyway) and not something I look forward to.

When the BC/BS nurse calls, she always asks if I've been in the hospital in the last three months, and always sounds pleasantly surprised when I say "no". Is it inevitable??

Hope you come up with a solution that feels right to you. There's no perfect asnwer, is there? I'm equally scared of MS and scared of the treatments.

Dejibo 03-15-2012 07:10 AM

No advice, just hugs. :hug:

I was on interferon's which were not bad, but didnt work for me. I was on C which was great when it was great, and then it all went sideways.

So...just hugs and prayers from me. :hug:

barb02 03-15-2012 10:40 AM

Trish, I am sorry to hear that you have been in the hospital. I hope the steroids start giving you some relief soon. You may need to take the prilosec twice a day for a few weeks. I remember my doctor told me to do that when I was having tummy problems from the steroids and on prilosec.:hug::hug::hug:

ANNagain 03-17-2012 10:21 AM

Tkrik,

I am hoping those steroids kick in but things do usually get a bit worse before they get better. (I have no idea what my next sentence was).

Sorry for the whole catastrophe. Glad that you are out of the hospital and back here.

In answer to your question, I am on Copaxone w no problems. I may run out of places to put it, though. I have no idea what my next drug could be.

Just get better,
ANN

NurseNancy 03-17-2012 01:04 PM

trish,

i'm sorry you were so sick and in the hospital.
i hope you con't to get better and feel better.

Natalie8 03-19-2012 10:37 PM

Tkrik -- Sorry to hear you were in the hospital. Roids truly suck! :(
I hope you are back to feeling better soon. I couldn't tolerate interferons or copaxone so the only option left was Tysabri. My neuro last told me there are 3 MS drugs in the pipeline and on the horizon...I hope you find something that you can tolerate. :hug: :hug: :hug:

Twinkletoes 03-20-2012 04:43 AM

I wondered where you were, Woman! So sorry it was the hospital. :( *sigh*

I hope your little bod gets straightened around so it works better and you feel better. Many hugs to you, dear lady! :hug::hug::hug:

tkrik 03-20-2012 01:53 PM

Thanks, Everyone! I'm finally starting to feel normal after the steriods. They just seem to take so much out of me. My walking seems improved but I still need the cane. My eye still kind of hurts and things still get a little blurry. And my bladder is back to normal. I don't know about my grip strength but I know opening bottles and such is still difficult for me.

All in all, I am doing better and should see more improvement over the next week or so. I have an apt with the neuro next week so hopefully he will note some improvement.

I have gone back and forth on what to do and which meds and will talk to the neuro about the different options. I may give C another try and see how I do this time. I just hate the real back post injection reactions that I was getting with greater frequency. I also am going to talk to him about something different for the muscle spasms and pain. I didn't realize how much pain I have been in with the MS until they gave me the morphine. So, I'm going to ask him about some other options other than Ativan.

Again, thanks!

SallyC 03-20-2012 02:01 PM

Are you doing any PT, Trish? That will help your improvement as well.:hug:

tkrik 03-20-2012 02:05 PM

We're going to discuss it at my appt. He wants me to see a new rehab. coordinator and start working on a plan for me. That will entail more PT and maybe some OT. Who knows. I'll find out next week. But, I know PT will help I just don't want to go back to the same PT I had seen. She just wasn't in to it and didn't really listen to what I was saying to her.


All times are GMT -5. The time now is 11:34 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.