advertisement
Reply
 
Thread Tools Display Modes
Old 03-15-2012, 05:50 AM #11
Blessings2You's Avatar
Blessings2You Blessings2You is offline
Elder
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Blessings2You Blessings2You is offline
Elder
Blessings2You's Avatar
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Default

Sorry you had to go through that miserable experience!! My stomach does flip-flops just hearing the word "morphine". I've never had steroids (not IV anyway) and not something I look forward to.

When the BC/BS nurse calls, she always asks if I've been in the hospital in the last three months, and always sounds pleasantly surprised when I say "no". Is it inevitable??

Hope you come up with a solution that feels right to you. There's no perfect asnwer, is there? I'm equally scared of MS and scared of the treatments.
__________________
*
*
*

**My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
Blessings2You is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-15-2012)

advertisement
Old 03-15-2012, 07:10 AM #12
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

No advice, just hugs.

I was on interferon's which were not bad, but didnt work for me. I was on C which was great when it was great, and then it all went sideways.

So...just hugs and prayers from me.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-15-2012)
Old 03-15-2012, 10:40 AM #13
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default

Trish, I am sorry to hear that you have been in the hospital. I hope the steroids start giving you some relief soon. You may need to take the prilosec twice a day for a few weeks. I remember my doctor told me to do that when I was having tummy problems from the steroids and on prilosec.
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-15-2012)
Old 03-17-2012, 10:21 AM #14
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
ANNagain ANNagain is offline
Senior Member
 
Join Date: Nov 2011
Location: Boston
Posts: 1,105
10 yr Member
Default

Tkrik,

I am hoping those steroids kick in but things do usually get a bit worse before they get better. (I have no idea what my next sentence was).

Sorry for the whole catastrophe. Glad that you are out of the hospital and back here.

In answer to your question, I am on Copaxone w no problems. I may run out of places to put it, though. I have no idea what my next drug could be.

Just get better,
ANN
ANNagain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-17-2012)
Old 03-17-2012, 01:04 PM #15
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

trish,

i'm sorry you were so sick and in the hospital.
i hope you con't to get better and feel better.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-17-2012)
Old 03-19-2012, 10:37 PM #16
Natalie8's Avatar
Natalie8 Natalie8 is offline
Member
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
Member
Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Unhappy

Tkrik -- Sorry to hear you were in the hospital. Roids truly suck!
I hope you are back to feeling better soon. I couldn't tolerate interferons or copaxone so the only option left was Tysabri. My neuro last told me there are 3 MS drugs in the pipeline and on the horizon...I hope you find something that you can tolerate.
__________________
On Tysabri and love it.
.
Natalie8 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-20-2012)
Old 03-20-2012, 04:43 AM #17
Twinkletoes's Avatar
Twinkletoes Twinkletoes is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Default

I wondered where you were, Woman! So sorry it was the hospital. *sigh*

I hope your little bod gets straightened around so it works better and you feel better. Many hugs to you, dear lady!
__________________
Rochelle
.



.


I've lost my mind ... and I don't miss it!


LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
Twinkletoes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-20-2012)
Old 03-20-2012, 01:53 PM #18
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

Thanks, Everyone! I'm finally starting to feel normal after the steriods. They just seem to take so much out of me. My walking seems improved but I still need the cane. My eye still kind of hurts and things still get a little blurry. And my bladder is back to normal. I don't know about my grip strength but I know opening bottles and such is still difficult for me.

All in all, I am doing better and should see more improvement over the next week or so. I have an apt with the neuro next week so hopefully he will note some improvement.

I have gone back and forth on what to do and which meds and will talk to the neuro about the different options. I may give C another try and see how I do this time. I just hate the real back post injection reactions that I was getting with greater frequency. I also am going to talk to him about something different for the muscle spasms and pain. I didn't realize how much pain I have been in with the MS until they gave me the morphine. So, I'm going to ask him about some other options other than Ativan.

Again, thanks!
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (03-20-2012), Twinkletoes (03-21-2012)
Old 03-20-2012, 02:01 PM #19
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Are you doing any PT, Trish? That will help your improvement as well.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tkrik (03-20-2012)
Old 03-20-2012, 02:05 PM #20
tkrik's Avatar
tkrik tkrik is offline
Wise Elder
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
tkrik tkrik is offline
Wise Elder
tkrik's Avatar
 
Join Date: Jan 2008
Posts: 8,403
15 yr Member
Default

We're going to discuss it at my appt. He wants me to see a new rehab. coordinator and start working on a plan for me. That will entail more PT and maybe some OT. Who knows. I'll find out next week. But, I know PT will help I just don't want to go back to the same PT I had seen. She just wasn't in to it and didn't really listen to what I was saying to her.
tkrik is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (03-20-2012), SallyC (03-20-2012), Twinkletoes (03-21-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Home from the hospital art chick Myasthenia Gravis 3 08-12-2011 12:40 AM
Home From Hospital Porkette Epilepsy 7 04-09-2010 05:52 PM
Home from the hospital... Pat 110 Myasthenia Gravis 29 10-03-2009 12:45 PM
Home from hospital momzpeachy Thoracic Outlet Syndrome 17 01-22-2008 03:20 PM
Home from hospital Cherie Multiple Sclerosis 40 11-10-2006 07:06 PM


All times are GMT -5. The time now is 03:45 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.