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03-15-2012, 05:50 AM | #11 | |||
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Elder
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Sorry you had to go through that miserable experience!! My stomach does flip-flops just hearing the word "morphine". I've never had steroids (not IV anyway) and not something I look forward to.
When the BC/BS nurse calls, she always asks if I've been in the hospital in the last three months, and always sounds pleasantly surprised when I say "no". Is it inevitable?? Hope you come up with a solution that feels right to you. There's no perfect asnwer, is there? I'm equally scared of MS and scared of the treatments.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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"Thanks for this!" says: | tkrik (03-15-2012) |
03-15-2012, 07:10 AM | #12 | |||
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Elder
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No advice, just hugs.
I was on interferon's which were not bad, but didnt work for me. I was on C which was great when it was great, and then it all went sideways. So...just hugs and prayers from me.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | tkrik (03-15-2012) |
03-15-2012, 10:40 AM | #13 | |||
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Grand Magnate
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Trish, I am sorry to hear that you have been in the hospital. I hope the steroids start giving you some relief soon. You may need to take the prilosec twice a day for a few weeks. I remember my doctor told me to do that when I was having tummy problems from the steroids and on prilosec.
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"Thanks for this!" says: | tkrik (03-15-2012) |
03-17-2012, 10:21 AM | #14 | ||
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Senior Member
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Tkrik,
I am hoping those steroids kick in but things do usually get a bit worse before they get better. (I have no idea what my next sentence was). Sorry for the whole catastrophe. Glad that you are out of the hospital and back here. In answer to your question, I am on Copaxone w no problems. I may run out of places to put it, though. I have no idea what my next drug could be. Just get better, ANN |
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"Thanks for this!" says: | tkrik (03-17-2012) |
03-17-2012, 01:04 PM | #15 | |||
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Grand Magnate
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trish,
i'm sorry you were so sick and in the hospital. i hope you con't to get better and feel better.
__________________
Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | tkrik (03-17-2012) |
03-19-2012, 10:37 PM | #16 | |||
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Member
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Tkrik -- Sorry to hear you were in the hospital. Roids truly suck!
I hope you are back to feeling better soon. I couldn't tolerate interferons or copaxone so the only option left was Tysabri. My neuro last told me there are 3 MS drugs in the pipeline and on the horizon...I hope you find something that you can tolerate.
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On Tysabri and love it. . |
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"Thanks for this!" says: | tkrik (03-20-2012) |
03-20-2012, 04:43 AM | #17 | |||
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Grand Magnate
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I wondered where you were, Woman! So sorry it was the hospital. *sigh*
I hope your little bod gets straightened around so it works better and you feel better. Many hugs to you, dear lady!
__________________
Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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"Thanks for this!" says: | tkrik (03-20-2012) |
03-20-2012, 01:53 PM | #18 | |||
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Wise Elder
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Thanks, Everyone! I'm finally starting to feel normal after the steriods. They just seem to take so much out of me. My walking seems improved but I still need the cane. My eye still kind of hurts and things still get a little blurry. And my bladder is back to normal. I don't know about my grip strength but I know opening bottles and such is still difficult for me.
All in all, I am doing better and should see more improvement over the next week or so. I have an apt with the neuro next week so hopefully he will note some improvement. I have gone back and forth on what to do and which meds and will talk to the neuro about the different options. I may give C another try and see how I do this time. I just hate the real back post injection reactions that I was getting with greater frequency. I also am going to talk to him about something different for the muscle spasms and pain. I didn't realize how much pain I have been in with the MS until they gave me the morphine. So, I'm going to ask him about some other options other than Ativan. Again, thanks! |
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"Thanks for this!" says: | barb02 (03-20-2012), Twinkletoes (03-21-2012) |
03-20-2012, 02:01 PM | #19 | |||
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In Remembrance
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Are you doing any PT, Trish? That will help your improvement as well.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | tkrik (03-20-2012) |
03-20-2012, 02:05 PM | #20 | |||
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Wise Elder
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We're going to discuss it at my appt. He wants me to see a new rehab. coordinator and start working on a plan for me. That will entail more PT and maybe some OT. Who knows. I'll find out next week. But, I know PT will help I just don't want to go back to the same PT I had seen. She just wasn't in to it and didn't really listen to what I was saying to her.
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