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03-14-2012, 06:44 PM | #1 | |||
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Wise Elder
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MS decided to rear it's ugly head to me during MS Awareness week. I ended up in the ER on Monday where they gave me some morphine and started IVSM. They kept me in the hospital until my last dose of steroids today, just to make sure my eye got better and I could ambulate better and my bladder settled down.
I just want biotch a second here . . .I hate getting steroids. They make me so sick. I wish I got the hyper feeling that others get but instead I get more fatigued and just plain sick feeling. I know I will see some improvement over the next few days and then an increase of symptoms and then back down to where I need to be. But still, I so wanted to avoid doing steriods but that was not an option this time. I go back to the neuro in 2 weeks to come up with a new medicine plan. Copaxone is out and I really haven't been on anything for about a couple of years now. Things seem to be progressing so I am not looking in to other options. Any suggestions? LDN is on my list of things to talk to him about. I'm hesitant about the interferons and some of the newer drugs that are out. So, what do some of you take and how do you like it? Pros? Cons? |
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03-14-2012, 06:57 PM | #2 | |||
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Legendary
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Awww Trish. So sorry you're had another exacerbation. I hate the steroids too but when my eye's involved I'm happy to take them to get my vision back to 'normal' just as fast as possible.
I can't offer advice about the meds because I won't take any of them. I've chosen to simply treat the symptoms as they arise and not fill my body with what I consider .... do nothing for me. I know others don't think the same way as I do, but that's OK, everyone is as different as this disease. I hope some-one can help you out and I hope you feel better soon.
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03-14-2012, 07:08 PM | #3 | |||
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Wise Elder
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Thanks, Anne! That's kind of what I have been doing but it just seems that over the past year or so I've had more trouble with symptoms and am now considering trying something to help slow things down. Copaxone was great but I had too many bad reactions to it. I really am hoping my neuro will be on board with trying the LDN. I printed the study again and will be bringing it with me to my next visit. When I saw the NP at my last visit she didn't say too much about it.
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"Thanks for this!" says: | barb02 (03-15-2012), Debbie D (03-15-2012), Kitty (03-14-2012), Koala77 (03-14-2012), Twinkletoes (03-20-2012) |
03-14-2012, 07:16 PM | #4 | |||
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Member
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I can't offer anything else but I hope you feel better soon
I hate steroids and will never go on them again.. Cindy |
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03-14-2012, 07:23 PM | #5 | |||
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Wise Elder
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Cindy - I know you just had your round to them as well. They are not fun. But I know that within the next few weeks I will be doing much better and so will you.
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03-14-2012, 08:06 PM | #6 | |||
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In Remembrance
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(((((Trish))))) Awwwww, I sorry you were in the hospital. I do hope those dam roids help....they better.
Feel better soon dearone..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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