NeuroTalk Support Groups

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-   -   The Elephant in the Room With a Bunch of Blind Men (https://www.neurotalk.org/multiple-sclerosis/166555-elephant-bunch-blind.html)

SallyC 03-19-2012 08:09 PM

I believe that most, if not all of the Neuros, breathed a big sigh of relief, when the DMDs began surfacing. Especially when the NMSS jumped on board. They still don't know what the "H" they're doing, but at least they have something they can offer to us that may help.

I just wish they wouldn't treat us as if we didn't have a brain in our head. Since none of these meds are cures and the data is pretty iffy on who the meds help and who they don't, it should be a partnership in deciding which one, if any. It should never be a my way or the highway type of relationship.

misshayleesmom 03-20-2012 08:12 AM

I couldn't agree more Sally!

I'm just worried now what damage I have now.. still no news on my appt.. with the MS clinic..still having spasticity:mad:

Just wish they would make up their minds.

Cindy


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