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-   -   New med for me-Avonex (starting soon) (https://www.neurotalk.org/multiple-sclerosis/167609-med-avonex-starting-soon.html)

ANNagain 04-05-2012 02:27 PM

I was on Avonex for 5 years w no exacerbations or lesions until the last year when I got 1 lesion. I was switched to Rebif then. If R din't exist I would have stayed on A. Just one lesion in 5 years is excellent.

Then there is the flu which gets better but not quickly. I took the shot on Saturdays at 6PM and slept through the worst part of the symptoms and was perfect by Monday.

Be well,
ANN

jackD 04-05-2012 07:41 PM

Now for the negative suff.
 
You will learn that Avonex takes at least 6 months to start working properly. If your MS is active it will delay that time a lot. Do not expect to see much MRI results for 2 years.

The antibodies to other interferons may also prevent the Avonex for being fully effective. Your neuro can find the latest on this.

Good luck! Ask questions.

jackD

p.s. I took Avonex for 10 years. I stopped after no change in my MRIs in the last 6 years. I still take the supplements that I found helped the Avonex work and lowered the MS progression activity.

D0ct0rT 04-07-2012 03:12 PM

Hi Jack,W, and Ann
That was my fear about the liver thing but we will start at half and monitor closely. I also worry about how beta made me suicidal (I've never experienced that before). I wonder if Avonex brings that on. I will look into it. Yes, sir, I've heard good things about that new med. I could wait on its passing and take nothing until it does or start Avonex. Neuro thinks I should be on something.

ANNagain 04-07-2012 04:09 PM

DoctorT,

Depression is a problem w all interferons. I didn't know I had any on A but I surely knew it on R. Be careful.

I see that you had elevated liver enzymes on C. I haven't heard of that. That one is not an interferon.

Best to you,
ANN

D0ct0rT 04-09-2012 02:34 PM

Quote:

Originally Posted by ANNagain (Post 867680)
DoctorT,

Depression is a problem w all interferons. I didn't know I had any on A but I surely knew it on R. Be careful.

I see that you had elevated liver enzymes on C. I haven't heard of that. That one is not an interferon.

Best to you,
ANN


Hi ANNagain,

yes, I have had elevated enzymes but it was not on Copaxone it was from Beta. I will def. be careful on it. It it makes me feel at all like the Betaseron did with suicidality I will not take it. That's my plan. I look forward to the new oral medication to be approved. I will look at that one closely too. :) Thanks for your input and your insights. :)


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