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-   -   What to think..plz help (https://www.neurotalk.org/multiple-sclerosis/167628-plz-help.html)

distractingAmanda 04-06-2012 12:02 PM

Quote:

Originally Posted by ANNagain (Post 867001)
Amanda, see if Uthoff's sounds familiar:


This is a symptom in MS that many of us get. It seems to fit.
ANN

Thanks! That sounds about right...if its not MS and all of this other stuff is just random weird things happening-I'm not sure what else this is and apparently my neurologist didn't know either. Just so frustrated-I feel like ppl think I'm making it up, I wouldn't even want to know what "notes" neuro put on my file-urgh. I can't figure this out so I guess I just don't get warm, I'm not sure how I'm going to do that but it's been going on for 2 years, I can get used to it I guess
You all are soo wonderful-Thank you!

NurseNancy 04-06-2012 02:09 PM

hello and welcome to NT,

have you seen an opthamologist by any chance? when you have visual disturbances it's best to also see an eye dr.

i agree you need to find a new neuro. the treatment you got is toally uncalled for and not something a competent dr will do.

don't give up looking for answers. do you have a good PCP? what does he say?
also, get copies of any mri's and all the other tests you had even if you have to pay for copies. you'll need them to show to any other dr.

please keep us posted.

distractingAmanda 04-08-2012 10:53 PM

Quote:

Originally Posted by NurseNancy (Post 867353)
hello and welcome to NT,

have you seen an opthamologist by any chance? when you have visual disturbances it's best to also see an eye dr.

i agree you need to find a new neuro. the treatment you got is toally uncalled for and not something a competent dr will do.

don't give up looking for answers. do you have a good PCP? what does he say?
also, get copies of any mri's and all the other tests you had even if you have to pay for copies. you'll need them to show to any other dr.

please keep us posted.

I have not seen an opthamologist, but am going to (even though my neuro didn't think enough to recommend that to me-he just said i don't know)

When I told my PCP (he is very good-concerned and willing to help) he seemed concerned. Right now I'm waiting for all of my test results and notes to be faxed to him.
Thanks so much! Will definitely get copies of my tests-great advice!

Kitty 04-09-2012 09:02 AM

Hi Amanda! So sorry you're having to deal with a less-than-professional Neuro. MS is a tricky condition to diagnose but your Neuro should have the professionalism and maturity to keep those immature reactions in check. My own Neuro got irritated at me last appointment I had with him because I would not go back on a medication that clearly did not agree with me. :rolleyes: I'm looking for a new Neuro and you'd probably do well to look for another one, too. Especially if you've not been diagnosed yet. Another viewpoint is invaluable at this point. Good luck! :hug:


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