Sorry Barb, that is too bad, but maybe your body is rejecting it because it doesn't need it?? My hemoglobin read low all my life. I was off and on iron supplements but finally told myself it just wasn't worth it, so went off the Extra iron.

B12 is another one that can upset your system if you take too much. I was taking 5000mcg per day and have reduced it to 1000mcg...much better.

I hope you can work it out and feel better soon. :hug:

I am taking 1000 mg of B12. It does not seem to bother me.

Hi Barb,

I can't tolerate iron very well either. I was iron deficient and was falling asleep all the time, my hair was falling out, my heart rate was rapid, my lips were always sore and chapped! I thought the fatigue was from MS but once I got my iron stores up it was remarkable how much better I felt. I no longer needed naps, no longer dragging.

But I had to take a liquid iron supplement which does not constipate and is easy on the stomach. Its called Floradix. The problem is that it is very expensive and is usually found in places like Whole Foods. There is a great discount online supplement store called iHerb. I buy everything there--products are already discounted and then if you buy regularly you get more discount. So I buy 5-6 bottles of the liquid iron at a time.

http://www.iherb.com/m/Flora-Floradi...0-ml/3005?at=0

I think the link above is for the alcohol free, yeast free, etc. like I said it was the only thing that got my iron up. Iron build up is slow too. But after a couple of months I was a totally different person!

Good luck! Speaking of which, I need to go take some now.

Was just given a referral to a hematologist. Nurse said they would most likely order an iv infusion.

I am low in B12 and take weekly injections (I give them to myself). I also have a slightly low RBC 3.2, hemoglobin is 11, hematocrit 33; however my ferritin is only 10.
No one has ever told me to take iron. I am alway sooo tired, my hair is falling out and mouth is burning and sore....but I thought that was from the MS and low B12; but maybe the low iron has something to do with it too??

Have an appointment with the hematologist on Thursday. Will report back.

I saw the hematologist this afternoon. I really like him. I have to go in next Wednesday for an iron infusion. It will take 7 hours:eek:.. Otherwise I could have spread it over 4 to 5 different appointments with each appointment taking about 90 minutes. I just chose to get it done in one apointment. I guess the main concern is with my ferritin level which is a 7. B12 had improved since taking the oral supplement.