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#1 | |||
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Member
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Not sure where to post this, so here it goes~ I have been on copaxone for just 2 months now and with every injection for the last 5 injections, I have gotten this huge painful lump under the skin and a nice beautiful welt. I am still working on getting rid of a huge lump in my leg from a month in a half ago!! I want to quit these shots. I did beta back in 2002 for almost a year and had bad side effects from that. Stick a fork in me... Im done. Anyone else?
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"Thanks for this!" says: | ANNagain (04-18-2012), Blessings2You (04-18-2012), Dejibo (04-19-2012), Kitty (04-19-2012), SallyC (04-18-2012) |
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#2 | |||
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Elder
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Hi there! This is the place, and welcome to it! Have you tried calling Shared Solutions for advice? I had some pretty big lumps the first few weeks; most of them went away. They told me to massage them the next day (not right after the shot).
I have a love/hate relationship with Copaxone. I get sick of it, or get scared of it and take a break...then I picture myself in a wheelchair or blind and I get scared NOT to take it.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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"Thanks for this!" says: |
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#3 | ||
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Senior Member
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Hi KL and welcome!
Sorry about your Copaxone experience. I believe it is everyone's Copaxone experience. It last for a few months and gets better. I called the company 2 or 3 weeks in and asked the nurses, "How do you keep anybody on this?" I'm now years (5, 6?) into this drug and I still occasionally get a bump but no more baseballs. And it is working. Everyone is different. You might want to think about your next move is before you stop this one. My best to you, ANN |
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#4 | |||
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Elder
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I did beta and it tried to kill my liver. I did copaxone for a long time and it left whelts, bruises, dents, and I felt horrible taking it. my neuro was not happy, but I laid down my needles. Im done.
I wish you the best of luck. ![]()
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: |
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#5 | ||
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New Member
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I'm on Copaxone second time around. Did 7 mo. was not helping. Went to Tysabri 8 mo. felt great, but, had 20 skin cancers cut off! (Tybabri promotes skin cancer if you'r the type). Doc said stop Tysabri, and go back to Copaxone(last 6 mo.) The big red welts, and pain or itching ranges from minor....., to major......!!! DIFFERENT EVERY DAY!!!!!....
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"Thanks for this!" says: | ANNagain (04-20-2012), Dejibo (04-20-2012), KittyLady (04-20-2012), SallyC (04-20-2012), Twinkletoes (04-21-2012) |
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#6 | |||
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Elder
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Been on C 3 1/2 years now...my neuro told me to inject it deeper. I use the autoject and I set it at an 8. I hardly ever get welts now.
Do you also push on the injection site with a cotton ball for one minute after you inject? It helps get the med in deeper... I had to discontinue injecting in arms and thighs. My thighs have a permanent thickening of the subcutaneous area. I have air pockets and crevices where I inject that are permanent. And welcome to NT...lots of info, support and hugs here. I learned so much from others here!! ![]()
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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#7 | |||
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Elder
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PLEASE dont push on Copaxone when you inject. its made of very sharp crystals and if you push on it, it causes those crystals to rupture, and that causes fat destruction. you can gently place an ice pack on it, or put firm pressure around the outside area, but avoid pushing into the middle of C. I learned that the hard way. With BRA you must push to get the meds deeper, but C is different and when you fracture those crystals, it not only makes your med less effective, it does tissue damage.
I hate this disease. Too many rules. Push for this, dont push for that. Rub this, dont touch that. Put this in the fridge keep this at room temp. Use an injector for this, its easier without an injector for that. ...too many rules!
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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