[Mariel]

Hi, I'm confused as to what the "MS Forum" is (where I posted yesterday, and there's no sign of my post here) and "Stumble Inn". What should I be googling to get onto the right forum? Book marks are not working since my son rearranged my computer.

I took p32 after thinking about it a long time. It is radioactive phosphorus, and it has knocked down my blood platelets about 3/5 in just a few weeks. I hope it stops knocking them down soon, as I am almost down to normal. Yesterday's reading was 470, just slightly above high normal.

This is touted as a way to stop potential stroke from high platelets causing clot. It can't be found everywhere, only place I know of is Mayo Scottsdale. It gives a slight chance of leukemia. It may need to be repeated. Local hematologists don't understand it.
But I tried all last year to take Chemo and had very bad side effects.

My feet are now almost pain free--could be the lessning of platelets caused the microvascular system to work better. However, feet are still numb, due to long standing peripheral neuropathy.

This treatment is for Polycythemia Vera, which I have in addition to Porphyria, and an old, old dx of MS which may or may not be accurate, no one knows. Also have Monoclonal Gammopathy.

Mariel