[Dejibo]

PLEASE know this isnt political. I dont care if she is D or R or L or from the moon. it was inspiring to see some of the behind the scenes stuff from a woman on the road with MS.

It shows her come out and introduce her hubby, and then instead of sitting behind him and hanging around for 3 hours, she goes back to the bus and lays down. Pampers herself, or naps. During Super Tuesday she said she was exhausted, and didnt tell anyone (typical of an MS person) and pushed past what she should have pushed past, and then...she started to have trouble finding her words. Stumbling, and had brain fog and had doubts about whether or not she was in serious trouble. The team scheduled in more rest for her, and allowed her to recharge, but she said it scared her so.

They also showed Mrs O's father. She claimed that he was dx when he was 30 and never complained about his disease a day in his life. Not once did he ever let on that he was tired, or in pain, or in need of help. I found that fascinating that a man in his 30s never let out a peep about how hard it was.

Are we all like this? dont tell folks when we are tired? dont complain when we know we need to lay down? Wouldnt say a word if we thought it would upset or burden our children? Push past our limits for a spouse who needs you to show up? I saw the same story with Terry Gar. She said she knew she was exhausted, yet she dragged out of bed each day and pushed past the pain. The experts were telling how that is the wrong thing for an MS patient to do, and there can be consequences for such things, but sometimes I guess we are willing to pay the price for our loved ones.

anyone else see it?

[mochagirl13]

I didn't see it but I wish I had. I'm always trying to get any tips or tricks to deal with the MS beast.

[doydie]

I think most of us are like that. With it just being my husband and I here now I can be myself, tired when I am and able to do things on other days. My Mom could always tell when I was having a bad day, could not hide it from her at all and it was always over the phone. But with her I also knew that I had to step up to the plate and help out. My sister has jsut as many problems as I do and even though Mom was in an assisted living facility she wasn't paying that part of the rent. She was independent. So it was up to my sis and I to do all her running to the store. When I am with my oldest daughter she knows when I am having problems and she won't let the grandaughters ask much of me. Of course it doesn't take much to hold a grand child and hug and read a book.

[ewizabeth]

I don't know if most of us can relate to being the spouse of a billionaire with having MS. I have this at times but I work 40 plus hours a week on my feet and I can't really relate to someone who has never worked, let alone had to want for any material need. And having MS without support or benefits is crucial in most of our situations, and since she has NO needs, I don't see how she is really relevant to most of us.

[Dejibo]

I dont think its about money. Altho I admit she has alot of it. She can go sit in a comfy decked out bus and rest, but the point was that she also, with money or not is not immune to the stressors of this disease. Poverty or not, she has not been immune to the stressors of this disease.

I have a beautiful car in the driveway, do I get to drive it when I want? nope! I have a beautiful home, do I get to clean it the way I want it cleaned? nope! I have to have "good enough" clean or I hire out. I have wonderful friends, and I am an amazing cook, do I get to have them over and cook a great meal? nope! We either go out, or I cater. I have a closet full of quilts that are half done dating back 200 years, do I get to drag them out and work on them with my fancy electronic sewing machine or my fancy golden needles? nope! they sit. If they are going to be fixed I am going to require help. Most of the time I am counting the blessing of my DH who says "you look so tired. let me cook tonight." Bless Him!

its not about relating to folks who have money, dont have money, are in the spot light all day or who sit in the dark. It was about a woman who is capable of spreading the word about this awful disease that in so many looks invisible and we constantly get the "but you look so good!" speach. Im glad she is speaking out and letting others know that its not as pretty as it appears.

[Desinie]

Yes, we all most likely knew that MS doesn't discriminate before the Romney's came into the spotlight. I agree that this isn't political. To me her story is personal and I relate to it well.

[Mariel]

That's interesting observation, Dejibo. I don't watch a lot of the politcal stuff--that is, I rest my eyes by keeping them closed and just listening to what is on the TV, some of the time. I've done that ever since I had Optic Neuritis.
So I didn't notice this about Ann Romney. I saw that she is very good looking, especially considering she's over 60.
I kept going for years and years at my work (teaching) in part by lying down in the "rest room" some times. I'm sure people thought I was weird--I didn't even have a dx of MS or anything during many of those years, but I had to lie down or at least put my feet up and close my eyes. The eyes, as we have discussed on another thread, are very sensitive with our neuro problems. I wore dark glasses to teach because they would not let me change the lights in my classroom. I did change the lights in my office, and it looked wonderful with incandescent lights, nice pictures...it was not sterile looking.
I miss it. Sorry I had to go on disability. Bummer, huh?

[QUOTE=Dejibo;873974]PLEASE know this isnt political. I dont care if she is D or R or L or from the moon. it was inspiring to see some of the behind the scenes stuff from a woman on the road with MS.

It shows her come out and introduce her hubby, and then instead of sitting behind him and hanging around for 3 hours, she goes back to the bus and lays down. Pampers herself, or naps. During Super Tuesday she said she was exhausted, and didnt tell anyone (typical of an MS person) and pushed past what she should have pushed past, and then...she started to have trouble finding her words. Stumbling, and had brain fog and had doubts about whether or not she was in serious trouble. The team scheduled in more rest for her, and allowed her to recharge, but she said it scared her so.

They also showed Mrs O's father. She claimed that he was dx when he was