Glad that improvement happened for you. I was in such severe pain with Interferon Alpha that I could barely go across the hall to the bathroom. It gave me a purple toe (I suppose made vascular problem in toes, no one knew, not even ER).

Mariel, I also felt foul when on Beta but immediately bounced back when I finished it.

Copax is coming out of my system quickly. I'm feeling goooooooood :)

I did jab two days ago and bang, pain, straight away for 24 hours.

So I'm drawing my own conclusions :eek::wink:

offinthedistance, I think your conclusions are right!

So, pray tell me your thoughts.

Within 3 days of no jabs, all my old neuro tickles, itches and water down the legs things come back.
Within a day of a random 'test' jab, my pains come back.

So is the Copaxone really working so fast?
is it wearing off so fast?
and when I take it, does it just 'mask' the neuro things or actually make them better?

Confused...

I would guess it is masking the symptoms if they come back that quickly when you stop it, a matter of three days! In my case, however, I will get more neuro symptoms within two or three days if I get off the Swank low fat diet, that is, if I eat red meat two days in a row (as when traveling, unable to get own food). I begin to stagger, meander, etc. I would say in your case, however, that enduring the symptoms is better than what you had on the drug. Perhaps you can take some things to mitigate the symptoms. I take Zyrtec (antihistimine) for itch. I don't know if your reason for having itch is similar to mine...mine comes primarily from another disease, Polycythemia Vera. But Zyrtec might help?
My jerks and spasms were back last night, in spite of taking enough magnesium. I attribute it primarily to the smoke pervading my environment from the New Mexico forest fires. I am very sensitive to smoke. Sometimes it is just impossible to avoid symptoms.

I stopped the med after being on it for a year...It just made me feel worse all over! I have not been on a DMD since..and this is four year later....but it may be coming back to kick me in the butt now..my ms symptoms are getting worse, no new enhanced lesions,but my neuro scale is getting worse. We are in the waiting game now to see what next....

Oh dear. I totally see what you're saying.
I know I'm better off without the copaxone. I can do more, I feel better. But the thought that neuro issues could be building up makes me reach for the needles again.
I just jabbed half an hour ago!! I just dont want to take the chance. But I know it's hurting me.

But if it 'wears off' so quickly, it must be doing something???!!!

:confused: