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Old 05-28-2012, 07:07 AM #11
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Dejibo Dejibo is offline
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Dejibo Dejibo is offline
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Someone asks "how are you?" If I am missing a limb or blind as a bat I say "im fine, and you?" and I do that cause DH is normally near by. I DONT want to go to the MD.

I have seen head specialists, back specialists, pee specialists, MS specialists, Eye specialists, IV specialists, Blood specialists, Heart specialists...the list goes on and on. Normally your first visit nets you compassion and empathy. your 2nd nets you a "you again?" style visit and the 3rd and up get you a "NEXT!" style care. You get a rushed visit with whom you are seeing, they are no longer listening, and treat you like you are making a big deal out of nothing. I CANT SEE PROPERLY! that is a big deal in my world! So, you get tired of being treated like a whiney cry baby and told that you just need to go home and rest. UGH! im so tired of trying to rest when none can be found.

so, I stay away from the MDs and when i do agree to go its with teeth gritted, mind made up, and ready to do battle. I dont like seeing them, anymore than they like seeing me. The MS center has been good to me, but all the MDs left and its now run by interns. They have NO idea what they are talking about, and each bump and bruise "is an MS thing" Not everything can be an MD thing, can it?

What did they do in the old days? They got told "you have MS, suck it up, go home and take care of your self and family" that is the road I try to stick to. I dont want anymore drugs, treatments, meds, or tricks to try to "fix me" MS has no cure, and the best they are going to offer me is IVSM and i have horrible access so even that is going to be a wild ride.

Im staying home. crossing my fingers that it will pass, and trying to get rid of most of the meds I am already on.
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Old 05-28-2012, 05:00 PM #12
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i see my neuro less than any other dr i see.
my pcp refers me to a specialist for every problem, almost, that i have.
and i've had a lot in the past few yrs.

while i think about something being posibly related to MS in most cases i think about what else the sx could be. so far nothing much has been related.
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