NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   New to Neuro Talk (https://www.neurotalk.org/multiple-sclerosis/170465-neuro-talk.html)

offinthedistance 07-01-2012 03:21 AM

Aren't we all a bunch of useful informative people!

Took Lyrica yesterday at lunch time. Today; I've been an absolute COW! Moody, down, angry, snappy and yuck. I've actually felt a heavy gloom hanging over me.

On the other hand I know that little pill can take away my pain. The temptation is huge...

offinthedistance 07-01-2012 03:26 AM

Quote:

Originally Posted by Dejibo (Post 883818)
I hate all these drugs! I just want to wake up and find it all went away.

Isn't it just awfully saddening when that doesn't happen.

I had a neuro appt last week and mentioned how dissapointed I was not to be better. i've done all I should. food, drink, jabs, exercise, the lot.
The fact that I can't make myself better breaks my heart.

ginnie 07-01-2012 09:25 AM

Hi Off in the distance
 
Hello, I wish all of us could make ourselves well. I too tried Neurontin and could not take the drug. The depression that followed me was horrible. I don't know which is worse, the pain or the depression. Now I have to tell my doctor about it. Hope you feel better today. ginnie

Erika 07-01-2012 09:35 AM

Quote:

Originally Posted by offinthedistance (Post 893288)
Isn't it just awfully saddening when that doesn't happen.

I had a neuro appt last week and mentioned how dissapointed I was not to be better. i've done all I should. food, drink, jabs, exercise, the lot.
The fact that I can't make myself better breaks my heart.

Yes, it is both sad, heart breaking and frustrating as well.

I have found that when these emotions and thoughts take hold, that it helps to remember a couple of things:
1. "I" am not my body, just as I do not have a disease...the body does.
2. If I didn't do all the things that I do to help the body stay as healthy as it possibly can, that the situation would likely be much worse.

Thus, after doing all that I should as you say, I can rest in the relative emotional-mental comfort that some things are beyond my control but their effects can be mitigated to some degree through intelligence and wisdom.

I wish you peace of mind that despite all the symptoms of this disease that play out in the body, that "YOU" can not be made better; for 'YOU" are already perfect, have always been and will always be that...just as you should be.

With love, Erika

SallyC 07-01-2012 12:19 PM

Quote:

Originally Posted by offinthedistance (Post 893288)
Isn't it just awfully saddening when that doesn't happen.

I had a neuro appt last week and mentioned how dissapointed I was not to be better. i've done all I should. food, drink, jabs, exercise, the lot.
The fact that I can't make myself better breaks my heart.

Amen!! I know exactly how you feel. :hug::hug:

Good advise Erika..:hug:


WHAT EVER HAPPENED TO kARMALA? LOL!!

offinthedistance 07-02-2012 03:09 AM

Quote:

Originally Posted by SallyC (Post 893369)

WHAT EVER HAPPENED TO kARMALA? LOL!!

Who?

:eek:

SallyC 07-02-2012 10:21 AM

Quote:

Originally Posted by offinthedistance (Post 893548)
Who?

:eek:

Ummmmm the starter of this thread..:D:p:D

jprinz99 07-02-2012 02:40 PM

Hysterical {{shaking head}}:eek::o

carebear01 07-02-2012 08:40 PM

I too had an awful time with neurontin...thought I was going to do myself in after being on it less than a week. Also tried Lyrica which made me very dizzy..almost vomiting. Recently, I have had bad muscle/bone pain in my legs..wanted to cut my leg off! Being that I had bad reactions from the two meds listed above, my neuro put me on Flexorel (sp?) for one week. After my first day on it my pain was gone...it was like a dream cuz my pain had been constant...mostly at night, waking me up and not being able to go back to sleep. My neuro said I can stay on it for only one week, maybe two at most. I'm just afraid that my pain will return..I've read where this can happen. I am a bit aggitated on this med, but am sooo happy to be sleeping through the night. I have read where this med has been given to many fibro patients and some ms patients for spacticity.

Mariel 07-03-2012 12:22 AM

I get spasticity relief from taking magnesium in a large dose, as recommended by a neurologist. Without it I would never sleep. I take 1000 mg a day divided into two doses, one a lunch and one at dinner. I can take them any time, don't bother my stomach because I get good brands at the health store. The cheap prescription a doctor gave me here (not the original doctor) gave me indigestion. When I have been in the hospital without magnesium I have been awake and spastic and jerky all night. Might help you. Doc gave this to me when I could not take Baclofen or Zanaflex.


All times are GMT -5. The time now is 12:18 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.