advertisement
Reply
 
Thread Tools Display Modes
Old 06-13-2012, 11:42 AM #1
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default GP just referred me to a rheumatologist

This morning I had an appt with my wonderful GP. We reviewed the work that had recently been done at a local neurology clinic, which turned up nothing. The only thing it did find was an abnormal EMG.

Based on my primary symptom of major weakness in the legs (very hard to walk), he has asked me to see a rheumotologist who he works with closely.

The tingling comes and goes, as does the blurry vision. After a clear MRI of brain and cervical spine the neuro states in his report that MS has been ruled out.

I don't have any experience with rheumatology and don't know much about it. Have any of you ever seen one?
__________________
.................................................. ...........
37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
.................................................. .............
restorativepose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (06-13-2012), Dejibo (06-14-2012), Kitty (06-13-2012), SallyC (06-13-2012)

advertisement
Old 06-13-2012, 02:01 PM #2
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

I hope the Rheumy can give you some answers. And a clear MRI doesn't necessarily rule out MS. Your GP should have referred you to an MS Neuro.

Keep us posted on how your appt. goes.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-13-2012), SallyC (06-13-2012)
Old 06-13-2012, 02:41 PM #3
Sparky10's Avatar
Sparky10 Sparky10 is offline
Senior Member
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Sparky10 Sparky10 is offline
Senior Member
Sparky10's Avatar
 
Join Date: Sep 2006
Location: Iowa
Posts: 1,094
15 yr Member
Default

Good luck on getting some answers, restorativepose! Just figuring what is wrong can make you feel better, even before beginning a treatment for whatever it is.
__________________
RRMS, diagnosed '00

Everything will be alright in the end. If it's not alright, it's not yet the end.
Sparky10 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-13-2012)
Old 06-13-2012, 03:01 PM #4
restorativepose's Avatar
restorativepose restorativepose is offline
Junior Member
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default

[QUOTE=Kitty;888562]I hope the Rheumy can give you some answers. And a clear MRI doesn't necessarily rule out MS. Your GP should have referred you to an MS Neuro.QUOTE]

The MS specialists where I was going won't accept a patient to diagnose / evaluate possible MS unless the general neurologist refers them.

Since my general neuro "ruled out MS" via a clear MRI, the MS specialist wouldn't see me.

.... which is why I'm now trying a different network (previously University hospital, now trying a local care network and also Mayo is reviewing my notes.) Persist! Persist!
__________________
.................................................. ...........
37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
.................................................. .............
restorativepose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ANNagain (06-13-2012), Kitty (06-13-2012), SallyC (06-13-2012)
Old 06-14-2012, 07:19 AM #5
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

MS can mimic more than 100 different diseases including those with lesions in the spine and brain. This is why they do so many different tests before handing you that label.

Sjoghrens comes to mind. it can cause many of the same symptoms including dry eyes, visual issues, dry painful joints, and so on. My MD sent me to a rhuemy to be sure.

they would also handle lyme, lupus and a bunch of other things that can mimic MS. Best of luck.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
restorativepose (06-14-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
just got referred by GP to rheumatologist restorativepose Myasthenia Gravis 3 06-13-2012 02:43 PM
Rheumatologist's fob-off! Megan Fibromyalgia and Chronic Fatigue 10 06-27-2009 08:25 AM
referred pain..... TraceyW Thoracic Outlet Syndrome 3 04-24-2009 05:29 PM
Referred sensations in patients with complex regional pain syndrome type 1 Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 0 10-02-2007 11:17 AM
Rheumatologist Appointment Quahog Chronic Pain 5 12-01-2006 11:05 PM


All times are GMT -5. The time now is 10:57 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.