Thanks Teddy. I wish they would try you on something...like at least solumedrol. I can see why they would be more hesitant with the chemotherapeutic drugs if you don't have a definite diagnosis, and there isn't much evidence for Betaseron working on PPMS, or anything for that matter. I don't know why they can't at least try something like Betaseron...as you say, it's obviously not them who can barely walk because of this damn disease...otherwise they'd be into trying everything.

Best wishes,
Matt

Hi Friends,

I was a member of BT1 for a few years, it was my home away from home
so to speak.

I was DXed 12-2000 with RRMS, had symptoms since 1994, it was a long
journey to being DXed. I'm 49, soon to be 50

I started on Copaxone but got skin Necrosis, then Avonex but lots of spinal lesions, so now Rebif for 5 months

I worked in Engineering as a Prototype Assembler Specialist before going on SSDI in 2003. I miss working, but I love being able to rest when I need to now.

I would sleep my life away nights and weekends, just to do it all over the following week.

After 27 years of working ( sometimes 2 jobs ), I gave in to
the fact I couldn't do it anymore and with the support of my Neuro and
family......quit.

I have been married to my Hubby / 2nd marraige for 12 years, (together a total of 20 ).

I have a 31 yr old son who "DOESN'T" live at home...LOL.
( Yes, I was a child bride )

My Mom (72) lives with us, she has a in-law apartment over our garage. I'm relieved she's near us now. She owned a home in a very bad part of a city in Mass., the crime rate was horrible and I worried about her everyday. Much less stress for us now!

I get pretty bored sometimes, as I don't drive anymore, so I started:
QUILTING!


Nice to see the "Oldies" and welcome the "Newbies"

MUPPY ( Cheryl )

Just Bumping This Up For Others

Welcome Home, Muppy...So glad that you found us.

Hi I am Soulflower and I was diagnosed with RRMS in June of this year. I also have 2 cousins with MS but they both live out of state.

My hobbies are crocheting, writing poetry, embroidery, and I am currently about to begin a sewing class in my complex to learn quilting .

I have no children and am on SSD and Retired. Lucky me, I retired at 38 on disability after 20 years of service.

I also like helping others in anyway that I can. I am excited to be starting a local MS support group chapter for my city in my complex beginning in January.

My journey has been rough, but keeping active and finding support is what has kept me in good spirits and feeling better each day.

Thank you for having me as a part of this wonderful forum.

Hi Soulflower,

Glad you joined us!

Welcome, Soulflower. So nice to meet you. I'm glad you have hobbies to keep you happy.

I used to do all that stuff, but I retired from just about everything. My fun, now, and what keeps me sane, are my Kids and GKids and my lovely laptop PC. Oh and of course my sweet wittle doggy Pal. (my avatar)

Glad to have you here.

Hi Soulflower.

Sorry to hear about the recent dx, but I think you've found a great support network with this motley crew.

Welcome to the gang, and the forum.

(And don't listen to anything they tell you about me . . . it's all lies!)

Cherie

HEY! *Motley Crew* ??!!

I resemble that comment !

Soulflower, boy could we tell you stories....all true

I knew that would get you going, Snoopy!