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Old 06-21-2012, 07:47 PM #1
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Default The Heat and MS

Has anyone, besides me, noticed that, even with the A/C on full blast, that the excessive heat outside, is still finding it's way into your body, to make you feel like a useless limp rag??

I get up from a nap and can barely make it to the bathroom....nooooo strength at all. E-Gads!! I have to force myself to stay up and find myself nodding off in the middle of something....oops..
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Old 06-21-2012, 07:51 PM #2
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Quote:
Originally Posted by SallyC View Post
Has anyone, besides me, noticed that, even with the A/C on full blast, that the excessive heat outside, is still finding it's way into your body, to make you feel like a useless limp rag??

I get up from a nap and can barely make it to the bathroom....nooooo strength at all. E-Gads!! I have to force myself to stay up and find myself nodding off in the middle of something....oops..
All I can say is...it Sux! On a side note...as long as the next day is cooler, we will survive. A few frozen cooler packs to sleep with & the nap!
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Old 06-21-2012, 08:06 PM #3
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ME! They picked the 3 hottest days of the year to make my major appointments on. I have TONS of running to do, yet the heat says NO! my tummy flips over, i get the hug, I cant think, the floor feels uneven, and ...im going to bed. I have an AC blowing directly at my bed on 66 and while the cats think its awesome, I want to crawl inside it.
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Old 06-21-2012, 08:46 PM #4
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If I'm in and out of the heat....like in the car then the store then the hot car.....it really effects me.

As long as I'm inside in the A/C it can get as hot as it want to outside and it doesn't bother me. But all it takes is for me to step outside for just a minute and my vision gets blurry and I walk like the floor is uneven.
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Old 06-21-2012, 08:59 PM #5
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OMG, I was just thinking this same thing today. Im alittle opposite tho. When it was cooler out, I was limp and had drop foot on my right foot. Now that its over 90, my muscles have locked up and won't relax....
Pets needed food today so dh and I went to the store and whew!!! HOT doesnt even describe it. It was 9am and we thought... lets go to the store early when its cooler out... yeah right!! The air in the store wasnt cold enough so we took the motorized cart and strolled thru the freezer isle for me. That did it!!
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Old 06-21-2012, 11:29 PM #6
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Definitely me too! This humidity is "killing" me. My all ready swollen legs are even larger with horrible hard, yucky-looking blisters on them. Can barely stand long enough to "back up" to the toilet or stay awake long enough to make it through one tv show. And this is with my central AC set at 67.

My daughter is visiting from Phoenix where it's been 100+ degrees, and says she's sweating more here with the high humidity. Out there it was only 5%. Of course it's really hot, but not muggy. Wonder if that would make a difference for us?

Hang in there everybody.....looks like cooler weather is on the way.
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Old 06-22-2012, 03:10 AM #7
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High humidity and heat are a nasty combination because the body can not cool down properly, so maybe it makes things harder for MS patients as well.

When the total sum of temperature plus the humidy percentage exceeds
150, many sporting events are cancelled because the risk of severe dehydration and heat stroke is so much higher than when that sum total is below 150.
For example if the temp is 90F and the humidiy is 60%, that equals 150 and the chance of heat stroke is higher.

It would be interesting to know how if that total number affects MS in a similar fashion. Maybe we should all keep track of it for a bit?
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Old 06-22-2012, 05:52 AM #8
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Way back when I was looking for a diagnosis, "stress" was considered as a possible cause for my symptoms (not just by my PCP, but also by me). I took a little getaway to North Conway NH, all by myself, a totally stress-free mini-facation.

It was mid-September, perfect weather--except no, there was a little heat wave. I was at the mall when I realized that I was having a real problem navigating, bumping into things, "wall-walking" in the stores, rubbery legs, brain soup.

That was the point where I knew, no, it's not just stress. There's something WRONG with me. I didn't know then that heat sensitivity was a common MS problem. I just knew that the hot weather was triggering problems that weren't normal.
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Old 06-22-2012, 08:19 AM #9
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I know others (that don't have MS) get tired of hearing me use "heat" as my excuse for staying inside but they truly cannot understand. Yes, I used to get hot on 90+ degree days but it didn't render me incapacitated. Now....it does. I just have to stay out of it.....and that means not even opening the front door.
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Old 06-22-2012, 09:30 AM #10
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Quote:
Originally Posted by Kitty View Post
I know others (that don't have MS) get tired of hearing me use "heat" as my excuse for staying inside but they truly cannot understand. Yes, I used to get hot on 90+ degree days but it didn't render me incapacitated. Now....it does. I just have to stay out of it.....and that means not even opening the front door.
Amen Kelly..
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