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Old 09-23-2012, 07:19 PM #31
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Great advice Kitty.!!

and I too have been thinking about you Bowdowntobri... !
...So you are just going to the Neuro tomorrow..? Have you had your second MRI with contrast yet..? ( i can't remember..?) keep us posted... PS. so far the Neuro specialist said my 5 highlighted Lesions are not looking like MS. but remember i had the spinal tap and all levels were normal "nothing elevated" at all... sooo ya never know.
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Old 09-24-2012, 05:54 PM #32
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So I had the neuro appointment this morning! It lasted about two hours - he took a complete med history, had me walk around to test my balance, checked all my reflexes, etc. Everything came back normal, except that my pupils react differently to light, which apparently is odd. I did get the chance to look at the MRI results from the research study, and based on that I have upwards of 20 lesions, although none in the areas that are typically associated with MS. Is that a lot? It seems like a lot to me...

I got blood work done after the appointment and will go get another MRI with contrast this Wednesday. I'm happy that at least I won't need to wait too long for this MRI, but my follow up appointment isn't until the end of November. Since I don't have any symptoms he doesn't seem to think that I am at great risk. Obviously he wants to look at the blood tests and see if any of my lesions are active or increasing in number, but it is nice that he at least told me that I shouldn't be overly concerned at this point.

For now I will think happy thoughts...
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Old 09-25-2012, 10:04 AM #33
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First of all, I add my welcome to the group Sabrina...

Second of all, though you're asymptomatic, it doesn't mean you're in the clear, MS-wise. Glad you're seeing someone at an MS center.
Keep a journal of symptoms (if any), and a list of questions for the neuro.

I like your attitude...it's important to be pragmatic at this stage. I also had lesions in areas of the brain that didn't fit with MS...but loads of symptoms. It took me over three years to get a diagnosis...so it does take time and it's a process of elimination. The last MRI showed I have 26 lesions, with one also in the cervical spine. Still, my neuro considers my case to be "benign"...tell that to my spastic legs & all the other body parts that don't work right

Keep us up to date, please!!
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