Okay so here's what I have effecting me now & some about me too...
I am 41 & had an episode back in '08 that was never truly diagnosed..
One Dr. said it was a TIA & another said possible MS. I am so confused & frustrates I have no idea where to go now.
I had an MRI that showed alot of White areas that show a dymeliating process that was also said could not rule out MS.
Later I had a BAER(negative) & a VEP(also Negative) Had a spinal tap(Dr. said negative too)
But I have a B-12 deficentcy.
I am getting more & more clumsy & stubling into the wall or such.
Lots of facial & head tingling(Alsmost all the time now).
I sometimes get things in my head when I am lying down mostly like a BIG Flash of lightning in my head(I know its in my head. But scares the crap out of me).Sometimes it can just happen when I blink.
I have severe migranes. I had a migane all day on Friday & into Saturday. Then I finally dozed off for about an hour then had an ER visit this past early Sunday(about 1:30am) due to it waking me up from a dead sleep with a pain to my right eye that I was thinking tearing it out would be a better feeling.
Well went to a Neurosurgeon on Monday(7/30) for my neck problems. I have up to 4 bad spots in my neck. But the NeuroS said he wouldn't operate due to him saying it would not help me at all. I asked how about the pain? And he said he could not fix that. My wife & I both looked at each other & knew we were going to another Neuro ASAP! I asked about the "Facial & head tingling" he said I don't know why or what's causing thatat all.
I thought man this guy is a complete Jerk big time now...
I do have lots of fatigue & other small symptoms of MS but I have not found a local Neuro doctor that will say conclusively anything. I have had 2 primary physians over the last 4-6 years & they definitly think MS. But the specialists the 2 that I have seen are just looking at their checklist & if I don't have a certain one or omit one they just say I don't know or just think I am just plain Wack O. I am just ready to strangle them both!
I know I might just seem to be looking for a specific diagnosis. But I am not at all. I just keep a diary of things that are happening me from day to day & then about every 3 months or so I add them all up & catorgize them & alot is adding up to MS. Although not real severe. But enough to truly worry me.
I truly hate it that there is such a long list & that a neurosurgeon puts MS so far down a list that by the time a person is classified as MS 5-8 years are gone... My brother was called nuts,depressed,alcoholic,druggie... And several other things for years before he was truly diagnosed with his MS down in Vanderbuilt.
I think if a doctor hadn't said he has fibromyalgia that he could have had a way earlier jump on his condition by about 3 years or more & that just ticks me off that a Neuro Doc has his set in concrete list.


I do have a brother that has MS & is rapidly spirally down. Over the last 3 years or so he has become paralyzed completely on one side,blind in both eyes & other majors symptoms. He was the big time football star & such back in school. Man he was great. I remember I wish I was just a 1/4 of the athlete or singer he is.
Talk about brother envy...Man I had it.

I am just wondering what others had to go through on their journey of MS.\
If they were just surprised by it, or had a good feeling that they knew what it was.
Any input for me would be great.