[Dejibo]

I broke down and committed to speaking to an "interventional radiologist" tomorrow about CCSVI. He will scan my veins and see what shape they are in, and answer questions and so forth. I have NOT made up my mind how I feel about this research, its process or its outcome.

One of the things that bugged me most was folks were clamoring to get this done, and had a wide spread of videos on the internet showing them stumbling, tripping, and unable to function well, then it went onto a functional balanced person who ran down the hall with no cane, no assistance and a dramatic change in their life. Sometimes you got one or two follow ups, but once six months went by you never heard from them again.

Even if its bad news or a redo or a failed attempt or you back slide to where you were before this thing, I would want to see it! So many said they didnt post anymore videos for fear that it would discourage folks from being tested. Well...duh! At least it was fair to tell us, instead of us assuming your life got better and you moved on and forgot us.

So...IF and that is a huge IF I choose to have this done, I promise to post a video, before, after, one month, two months and all the way thru a year, with or without progress, with or without backslides or a worse disease course.

Step one...go for the exam. Tomorrow is my day.

Say a prayer for me. its going to snow ...again! and we are driving right thru the thick of it to get there. Im so car sick now from the blindness. its gonna be so hard on me to be in the car 2 hours.

[ANNagain]

Wishing you a good day w answers that you need.

And, I agree w the lack of public discourse about failed or no progress results. I'm not on FB, so maybe it is there?

Thanks for your promise,
ANN

[SallyC]

Go get 'em girl. I'll pray it works to bring your sight back, if nothing else..

[Dejibo]

ok, climbing in the truck in a minute to go for my exam. Since nothing is being done but an exam, I dont feel the need to post a video.

Thanks
Dej

[Kitty]

Hoping all goes well and you hear the news you want to hear. Even if the procedure brought back your sight and nothing else it would be well worth it. I'm so glad you're getting the chance to at least explore the options.

[SallyC]

Report in as soon as you get home. Well you may eat first..

Good Luck..

[Aarcyn]

Everything set for the procedure in mid August.

I am glad I am doing this. I won't wonder anymore if it actually would alleviate any of my current sx's.

Less than four weeks away and counting down...

[debw]

Good Luck Aarcyn!! Keep us posted! Hugs!

[kicker]

Originally Posted by Aarcyn

Everything set for the procedure in mid August.

I am glad I am doing this. I won't wonder anymore if it actually would alleviate any of my current sx's.

Less than four weeks away and counting down...

Aarcyn, looking forward to what you will have to say.

[Aarcyn]

I really believe that if one lives life without regrets, then one has learned nothing from what life has to offer.

Since the stats are low that something truly bad will happen, I do not want the regret about if I had only tried the procedure.

I dream of being a youtube sensation like the girl that could jump again.

Nothing ventured, nothing gained.

And speaking of regrets, I never want to jump out of an airplane at 3,000 feet again. Yes, I really did that over thirty years ago. I was a wild girl in my 20's. And I have plenty of regrets and plenty of stories.