Erika, I enjoyed your scientific response and agree with every word.

As a QA specialist, I am looking at this from a "swiss cheese" theory of risk management. If I can remove one of the causing elements, and avoid the hole, possibly the end result of myelin damange can be avoided. I think every current treatment modality is working on this premise. The trick is to find one that moves the hole consistently and causes the least amount of other problems.

Thank you for your wonderful post.

I so agree. I have been "moving the hole" for many decades now, before and after diagnoses. At this point I am approaching the point where I can't move the hole any more, emotionally. I've been trying to manage things too long. At this point I appreciate why some people say they don't want to keep "coping," just want a pill to fix what can be fixed.
I wish I could try LDN but it would take a very knowledgable doctor to tell me if I can take LDN when I have Porphyria. I do not currently know any doctor who understands porphyria. They may understand a little, and I can fill them in on many areas, but I have no knowledge about the Porph/LDN configuration and I don't think they would either. I really need help right now and there isn't any.

Mariel,

I don't want to take this thread too far off topic.
Please pop on over to the LDN Information & Check in thread. I've left something there for you.

With love, Erika

Thanks, Erika. I will go over to LDN information when I have time. Must leave for an appt. right now.