[AfterMyNap]

Anyone been through this? What were the first signs for you?

[Chris]

Originally Posted by AfterMyNap

Anyone been through this? What were the first signs for you?

Cindy,
I actually did a study from a group here that pays medical professionals about different drugs and their uses. I don't know why or how I was chosen to be in this group, but they sent me some information and a very interesting website about pseudobulbar affect. I can get the information for you when I return to the office next week. It's very common in MS and stroke patients-much more so than most physicians are diagnosing it. There are quite a number of medications that they are testing for it at present. Most patients when asked believed that they were depressed when indeed it was not depression. These patients often have innappropriate laughing and crying spells. It was quite interesting to learn about it. Let me know if you'd like the website or any information I can send to you.

*I also got a lovely pen from the drug company that has a purple light on the end of it when you write with it*

[AfterMyNap]

Thanks, Marg, I'm only vaguely familiar with it from reading; I'm also interested in hearing from anyone who has actually been dx with it.

[Chris]

Originally Posted by AfterMyNap

Thanks, Marg, I'm only vaguely familiar with it from reading; I'm also interested in hearing from anyone who has actually been dx with it.

Di, darling. Is there a stroke survivor's group on here? Perhaps you can go over there and ask some of them if they've ever been diagnosed with it. From what I remember, it was more commonly diagnosed in post-stroke patients. It seemed to me also that there were more females effected than males. I would check out the post-stroke forums and see what you can seek out.

GOOD LUCK!!!

[greta]

I've seen sparky post about this a number of times. I think she took Lexapro to modulate.

[Chris]

I just did a search. Now I recall, it's referred to as IEED. This seems to be the only post about it on here.

http://neurotalk.psychcentral.com/sh...fect#post44754

[AfterMyNap]

Thanks, Chris, I found some more general info on some of the more common websites. Also, some interesting professional journal articles in the databases via my regional library.

I'm boning up on my Latin and learning a lot.

[Silver663]

Originally Posted by AfterMyNap

Anyone been through this? What were the first signs for you?

I have Pesydobulbar Affect, want to chat?

*edit*
Here is fine but I see not many people here have it and I find there arn't many chat/support areas on the internet...

Yours in Stone,
Silver

[jprinz99]

same here as I also have PBA. While I can't "fix it" I might be able to offer some coping tips --or at least be someone else to bounce things off of

[Debbie D]

I have it as well. I was on Neudexta for it. It is specifically for PBA for ALS and MS patients.
I was taken off of it last month when I was in the hospital...they thought it caused bradycardia. When I saw my neuro the week after, he was very angry with them for taking me off, because he knows it doesn't cause this.

I saw my cardiologist today and she told me to go back on it. She was confused as to why I was taken off of it. She feels the benefits far outweigh any risks the med might cause.

I have been extremely weepy since being off of it...sobbing at the first sighting of a robin, for instance...the drug really helps, and also reduces neuropathic pain. I am going back on it.