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Old 09-17-2012, 07:16 AM #11
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Hello Hi5Mom

I was 32 when I was diagnosed with MS. I looked at it like an ending. I was scared, confused and worried. I had so many lesions, and I was stumbling, had bladder and bowel issues, was half-blind, and 'brain-foggy'.

Now, 11 years later, I have found a new career. I am teaching adults to do all of the things I could do in my former life (secretarial and retail) - and a lot more. I have been able to learn new skills and build my education.

One of my now colleagues (a former teacher of mine) said to me 'how do you know you won't be able to do this? It could take years until it stops you...' That was a big wake-up call for me, and gave me a new attitude towards managing MS.

I am (for the most part) in control of my disease due to medication. Most of all, I have learned that although I can't necessarily control what my body will do, I can control my reaction to it, and there are a lot worse things I could have been diagnosed with.

Yes, this may all change as it progresses, yes, there are no guarantees. Having said that, there are no guarantees in this life for anything.

After many years of thinking I was imagining strange things happening to me, it was strangely a relief to get a concrete diagnosis.

I wish you all the best, come here for support and information. It has been a godsend to me.

Hugs

Lyn
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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Old 09-17-2012, 07:53 AM #12
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I should be hearing back from the neuro today with the results of the MRI. part of me hopes is found there and testing is over. Of course a big part of me hopes that nothing is found. I know there is something wrong I just want to know what it is and move on. My husband came home early from his business trip and is waiting to leave again so he can be at my follow up appts. He is taking this a lot better than I am.
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Old 09-17-2012, 12:17 PM #13
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Here's hoping it's something that's fixable..
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Old 09-18-2012, 05:04 AM #14
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one positive aspect is that you now have a large group of great new friends!

I would second the earlier comment to keep this prettyquiet at work for now, as it is not always understood and can cause ramifications with employment & obtaining (new) insurance policies {such as life ins/long term care ins etc}

A good resource is the National Multiple Sclerosis Society and the Multiple Sclerosis Foundation, etc IMO. *and of course here for the support factor!

Being in the limbo stage stinks! I hope you get the answers you need and want.
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